We are a small Personal Training studio called B-FIT Studio in Stafford, and we have decided to raise money for the owners neice Penny, to make special memories in DisneyLand Paris this year.

We are taking on a huge challenge as a community at B-FIT Studio — walking 894 miles collectively, the distance from Stafford to Milan, in support of our beautiful Penny and to raise funds for families affected by Sanfilippo syndrome.

We chose Milan because it is hosting the Winter Olympics, and just like the athletes who train with determination and heart, Penny shows incredible strength every single day. This walk is our way of standing with her and showing that she is never walking alone.

What is Sanfilippo syndrome?

Sanfilippo syndrome (also known as MPS III) is a rare, life-limiting genetic condition that primarily affects children. It causes progressive damage to the brain and nervous system, leading to developmental regression, loss of skills, behavioural challenges, and ultimately a shortened life expectancy. There is currently no cure.

Penny’s story

Penny was diagnosed with Sanfilippo syndrome at the age of 4. Like many families, the diagnosis came after years of questions and uncertainty. Penny is full of joy, personality, and the most infectious smile — but behind that smile is a condition that will gradually take so much from her.

This fundraiser is not just about miles walked — it’s about awareness, support, and hope. Every donation helps support Penny, her family, and the wider Sanfilippo community, while also helping to fund vital research and resources.

We will be tracking every mile walked, cheering each other on, and keeping Penny at the heart of everything we do.

Please donate if you can

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Walk with us in spirit or in steps

Thank you for supporting Penny and helping us turn 894 miles into something truly meaningful.