Callies Surgery

Callie was born with a rare syndrome called Apert Syndrome. She is almost 15 years old and has had 19 surgeries. The surgery that is approaching in September is one of her most dangerous and critical surgeries of her life. With Apert Syndrome the midface does not form properly, in return she has no nasal airway, bulging eyes, poor hearing, small mouth and severely crowded teeth. We attempted this monoblock R.E.D. device surgery back in 2012 and things did not go well when she had a severe blood reaction and went into cardiac arrest and had to be worked on for 45 mins. Thanks be to the Lord above and thousands of prayers Callie survived and unfortunately had to have a tracheostomy. So now 4 years later she will be going back into surgery for her midface advancement. But instead of 100 miles away from home we have to travel 400 miles to her doctor who had since 2012 moved his practice to Michigan. So we will be traveling and I will be with her and off work during the time. She will have to wear the RED device for 4 to 12 weeks. The hopeful benefits of the device for Miss Callie will be a nasal airway(hopefully she'll be able to smell), increased vision, better hearing, hopes to get her trach removed and a more "normal" look. I hate to use the word normal but to most everyone she does not look normal. To me she's beautiful any way! But she will be a freshman in high school and we all know how cruel kids and even adults can be. We will have multiple out of pocket fees for medical bills pertaining to this surgery even with insurance. Everyday bills don't go away even though this child is in the hospital so I'm am asking for any help to offset the bills piling up! Thank you from Callie and family! God Bless

Donations

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  • Clara Carpenter 
    • $5 
    • 20 mos
  • Lynn Lowe 
    • $100 
    • 28 mos
  • Beth Brankin 
    • $25 
    • 31 mos
  • Anonymous 
    • $25 
    • 37 mos
  • Anonymous 
    • $100 
    • 37 mos
See all

Organizer

Cari Hanson 
Organizer
Wyanet, IL
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