
Sponsored Tshirt wear for RTS
After morg was diagnosed with a rare type of osteoporosis having exhausted all possible health reasons his Dr's went on the search for a genetic reason, they didn't find it but did find morg has Rubinstein-Taybi Syndrome, a few weeks ago the rts support group put on a conference to help families like ours get information and meet up, morg was over the moon to meet others like him and actually shed a tear when it was time to go because he loved it so much.
RTS is very rare and so is the research into it, at the conference we were told about a PhD student who is looking to change that and so we are one of many hoping to raise some funds for her research. Morg loves his tshirts, designing them, getting people to guess who's on them and doing Tshirt surveys to see what other people are wearing, so his fab idea for fundraising is a sponsored tshirt wear, over the weekend (12hrs a day) he plans to wear as many Tshirts as possible and share a pic of each one, we are also going to enter into the guiness book of records with it (another favourite of morgs) so please donate if you can or if you can't, share for us :) thankyou
Do you want to join me in making a difference? I'm raising money in aid of Rubinstein-Taybi Syndrome Support Group and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.
More information about Rubinstein-Taybi Syndrome Support Group: We offer support to families and carers of those affected by Rubinstein-Taybi Syndrome (RTS) to help raise awareness of RTS amongst the medical community and the general population. In order to support families we: provide information about RTS (especially useful to families who have just received a diagnosis) Highlight, social activities, medical and policy developments etc. arrange regular social family get-together days and weekends organise larger scale conferences and learning and support events
Organizer
kate perry
Organizer
Cymru
Rubinstein-Taybi Syndrome Support Group
Beneficiary