Save Maksim – A Brave Boy Fighting IRF2BPL Mutation

Dear friends, compassionate hearts, and believers in hope,

This is a call for help—a cry from a family doing everything to keep their little boy alive.

Maksim is a beautiful, brave soul battling an extremely rare and devastating genetic mutation called IRF2BPL. This cruel disorder is slowly robbing him of everything—his ability to eat, breathe, move, and simply live like other children. But Maksim is still here. He’s fighting, every single day.

He now eats through a feeding tube (gastrostomy), breathes through a tracheostomy, and endures painful seizures that can last for hours. He wears a catheter for days due to severe urinary complications. His little hands are stuck in tight, painful contractures that keep him from playing, touching, or even holding on to the people he loves.

Yet despite everything, Maksim shines with courage. And we refuse to give up on him.

There is hope on the horizon. A gene therapy is being developed specifically for IRF2BPL, but it’s still in its final stages of research. Until then, Maksim must stay stable and strong enough to one day receive that treatment—and that means he needs help now.

We are raising funds for:

• Urgent medical care and hospital treatments

• Specialized therapy and equipment

• Surgery to release the painful contractions in his arms

• Ongoing support to improve his quality of life

We need your help to keep him fighting. Please donate, share, and stand with us in this race against time. Maksim is a warrior, but he can’t win this battle alone.

Let’s come together and be the miracle Maksim is waiting for.

With love and gratitude—thank you for believing in our hero.

Dear friends and donors,

Maxim still urgently needs our support

The following vital measures are pending.

● Gene therapy in Berlin!

●The rehabilitation he needs in Serbia and abroad!

●Consumable medical supplies (necessary for Maxim's survival) and utilities!

Please share this post and donate. Every euro is valuable and brings Maksim a little closer to his health!

Thank you for your support, for your donations and kindness!

One small thing means everything to someone!

From❤️for Maxim!

Liebe Freunde,

die Lage ist sehr dringend !

 

Ein kleiner Nachbarsjunge aus Serbien, braucht dringendst medizinische Hilfe.

Diese ist nur auch mit eurer Unterstützung umsetzbar.

Maksim leidet an Cerebrale Lähmung, Asthma und Epilepsie.

Dieser Spendenaufruf ist mir sehr wichtig und liegt mir besonders am Herzen.

Ich würde mich sehr freuen, wenn auch du einen Beitrag spenden würdest !

Jeder Euro ist wertvoll und bringt Maksim zu seiner Gesundheit ein Stück näher.