Speechless for Rett

October is Rett Syndrome Awareness month and I will be asking you to put your money where my mouth is!!! Yep that's right I am pledging to to be Speechless for Rett for 24 hours...The more you pay the less I will say! 

Rett syndrome (RTT) is a genetic disorder in which the brain does not mature in the way it should. For most children, their early development appears normal but then slows down or suddenly halts. Symptoms of Rett Syndrome and degree of disability can vary considerably but Apraxia (dyspraxia) where the brain has difficulty putting in place the automatic planning needed to carry out voluntary movement, is the most fundamental and severely handicapping aspect of RTT. What is Rett Syndrome 

Many who suffer from Rett Syndrome have difficulty communicating, they are unlikely to be able to communicate verbally and Apraxia can make it hard to use other communication aids effectively. Imagine how you would feel everyday having something to say and not being able to communicate it!  Speechless for Rett will give those of us taking part a small insight to what that might be like whilst raising awareness for others. 

My reason for doing this, a beautiful girl called Abigail. 

Abigail has Rett syndrome and she struggles to connect in way so many of us take for granted.  She can't talk, type, text or even point. She struggles with touch, movement and getting her body to listen to her. But she is strong, smart and persistent, and she has taught me so much.  What I am going to do for 24 hours, Abigail has to navigate everyday! 

Abigail is not alone in her fight against Rett and so I am raising money in aid of Rett Syndrome Association of Australia Inc and every donation will help a girl like Abigail and their families.

Thank you in advance for your contribution to this cause that means so much to me.

More information about Rett Syndrome Association of Australia Inc: Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. The Association seeks to enhance the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder. July 2020 will mark the 31st anniversary of the Association