Ruth & Sandy #SosaTwins - Angelman Syndrome

Hi everyone, my name is Sue Potter. I am a long-time friend of Sam and Dana Sosa.

They found each other and married in 2015. Not long after, they had their twin daughters, Ruth & Sandy. As the girls grew to three years old, they were diagnosed with Angelman's Syndrome. With this news, they immediately to action investing lots of time in understanding the diagnosis and working to find the best life for their daughters, including participating in fundraising efforts for Angelman Syndrome to help find a cure.

Angelman's is a rare neurogenetic disorder that affects approximately (1 in ~15k births) worldwide. Children and adults with AS typically have balance issues, motor impairment, and debilitating seizures. Some individuals never walk. Most do not speak. Individuals with AS require continuous care and are unable to live independently. Angelman's is characterized by global developmental delay, including cognitive, speech and physical delays similar to severe autism. In the majority of cases, these children also develop seizures.

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While we all can help Sam and Dana and participate in the Angelman’s walks to support the cause, I hoped we could help them personally in their mission to make the best life for their girls.

The girls are now 6 years old and they have found allowing the them to be most active has made a difference in their development. With that, I thought we could start a GoFundMe to help with their mission and have a PLAYGROUND built in their backyard! They both give so much to others; I hoped we could help them!

Estimates for such a project most fitting for their disability range from $7k to $15k. Let us join together with love and support of a gift to help our friends.

Thank you so much for taking the time to read this and consider supporting this project.