Sophie's 1st Year With Cystic Fibrosis

I've arranged this GoFundMe in honor of my niece's first birthday.

Sophie Grace was diagnosed at 10 days old with the F508del mutation of Cystic Fibrosis. This life-threatening disorder damages the lungs and digestive system. Cystic Fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts, and passageways.

Her mom and dad, McKenna and Jared, are amazing, loving, positive minded parents. At least for Sophie's first year or two, McKenna and Jared made the decision for mom to stay at home (as long as possible) to care for Sophie and keep her away from as many germs as possible.

Even though there is no cure for CF, our family is extremely thankful for the strides towards the cure. Just this year, the "game changer" drug, Trikafta, has been FDA approved for 2-year-olds. This drug targets the basic defect from the specific genetic mutation.

To honor "Team Gomez" (Sophie, McKenna and Jared) on her first birthday, I've started this GoFundMe to help with the extra expenses during this time of loss of income.

People living with CF require extra spending including essential but costly dietary needs, attending medical appointments, home medical equipment, and expensive prescription charges.

Sophie's smile lights up the whole room. Keep smiling beautiful soul!!