Eva is one of the youngest to be diagnosed with SMA Type1. Without scientific definition and in a quick summary, SMA Type1 is a severe infantile form of spinal muscular atrophy characterized by severe and progressive muscle weakness resulting from degeneration and loss of the lower motor neurons in the spinal cord and brain stem nuclei.
In other words, that means she may never sing at the talent show, never dance with her father at graduation, never have the chance to experience her first heart break or make her mother nervous as she learns to drive, never get to walk down the aisle. A textbook definition could never contain the gravity of this. Words cannot explain the gravity of this ! She may never get to experience so many things in which to the norm is regular life, but no matter what, she will always experience our love. We just hope that is enough.
We have had an immense amount of help from our loving communities, with 2 million dollars raised since her diagnosis in October at less than two months old. This is a huge feat, but we still have a third of the way to go… because close just isn’t enough when it comes to life or death.
Songs for Eva is one of our biggest pushes yet, in hopes that we reach our final 1 million dollars. Musicians from here and overseas are coming together to perform an online concert, with the help of MDC Media Group. You can stream it on May 9 from 2-7pm (EDT) on http://songsforeva.com
or watch it on Camões TV.
Please enjoy the concert, we hope one day Eva can dance and sing too.
Thank you for taking the time to learn about Eva, for your kindness, and generosity.