SAVING KAY

Following on from the successful Saving Kay campaign to raise funds for Kayleigh's cervical fusion surgery in 2019 we are preparing to raise funds for Kayleigh's continued medical expenses as we battle with the co-morbidities associated with Ehlers Danlos Syndrome that continue to make her life a living hell. We anticipate the possibility that more spinal surgery and other therapies may be required which the NHS may not be able to offer. At this stage we're still investigating her conditions and arranging tests to better understand what's happening so we can figure out what treatments are needed. So for now this page is about being ready to act when the need arises.