Smiles for LJ (Little Johnny)

LJ is a happy seven year old boy who was born with a vascular malformation. A vascular malformation is an abnormal cluster of blood vessels that occurs during fetal development. LJ's vascular malformation is in his face (lip area). When he was born my husband and I were in shock of the bruise like mass on his lip. He had an MRI of his head to be sure it was not attached to his brain (thankfully the report came back with the results that it was indeed not connected to his brain). After the MRI we have been to a dermatologist who said it was way to big for her to operate. She sent us to a pediatric plastic surgeon who said the same about its size. He sent us to a radiologist to perform procedures called sclerotherapy which inject an antibiotic into the feeder vessel to form a clot so the malformation would get smaller due to lack of blood flow. Unfortunately LJ did not respond to the antibiotic three different times so the radiologist tried endovascular laser treatment which is the process of a laser being used inside the vein to burn it closed. Once again this procedure had no positive outcomes. We have since seen a craniofacial specialist and he too has not given us an answer as to how we can get this smaller to be operated on. I did some research online and I found a specialist of vascular birthmarks in NYC. We have since been to his office on Halloween, 2014, for a laser treatment to break the mass off the wall of his face. LJ had radiation burns from this procedure which have healed. He has also had removal surgery which was December 17,2014, with a pre-op procedure injecting foam in his lip the day before (the 16th). He had another surgery on  May 27,2015. They removed most of the remainder of the malformation and laser his gums because when he teeths his mouth bleeds because it pushes through the malformation. The last surgery scheduled was August 26, 2015. The doctor was afraid to remove the entire malformation due to blood loss and possible paralyzation. We are now waiting to schedule an appointment with a plastic surgeon to correct the shape and hopefully help the function of LJ's lip. We need help paying for the $30,000 we have already endured, plane tickets to get us from TX to NYC, and we need help paying for all the out-of-pocket small stuff that add up (like food, transportation, room and board, etc.)! AND Please remember to smile! If LJ can smile through all of this, so can you!!! Donations are greatly appreciated remember every little bit counts (even something as simple as $5) and prayers mean the world! 2057466_1613367588710227_r.jpegSept. 2020



March 2016!


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LJ's one year old picture!

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Just got home from a sclerotherapy procedure.

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The day he was born. (Poor baby looks like he was in a boxing match)

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Waiting in Children's for his first procedure. (Flirting with the nurses)

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About 11 months old with a fresh hair cut!

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The swelling after one of the procedures. (But STILL smiling)

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The nurses at children's are so nice they got him a turtle!

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Good thing mama is inventive. She made me a "bottle" I could eat out of.

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May's pre-surgery picture.

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December's pre-surgery picture!
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  • Anonymous 
    • $100 
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    • $5 
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Organizer

Blossom Hendricks 
Organizer
Greenville, TX
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