I was diagnosed with Spinal Muscular Atrophy (SMA) when I was just two years old, back in February of 1997. Despite living with SMA for many years, I've never had the chance to attend an SMA conference. This year, I received a scholarship to attend the SMA Conference at Disneyland, which covers the hotel and part of the airline tickets. However, there are still significant costs that I cannot afford on my own.

The conference runs from June 26 to June 30, and it offers a unique opportunity for me and my husband and caregiver, Zachary, to meet other couples dealing with SMA. We are eager to participate in the couples sessions, join the adults with SMA group, and learn about new breakthroughs in finding a cure. This trip is not just about learning; it's also a chance to relax and be around people who understand our journey.

I haven't been on a trip like this in over 17 years, and the costs for airline tickets, park passes, food, souvenirs, and transportation add up quickly. We are seeking support to cover these expenses. Your generosity will help make this dream trip a reality, allowing us to connect, learn, and enjoy a much-needed break.