On the 9th January skyla-rae has sadly lost her fight with sanfilippo syndrome and gained her angel wings .

Skyla was diagnosed with sanfilippo syndrome on the 17th March 2020 at 5 years old a terminal illness with no cure that's a metabolic condition and was born with it .

Skyla has fought hard and strong suffering 3 cardiac arrests and 1 respiratory arrest.

Skyla has 3 other siblings that have took this very hard and a mother who's world has shattered ...

We want to give skyla the best possible send off without mum having to worry about anything and to have some memorial keepsakes made out of skylas clothes anything left over after will be donated to derian house where they cared the best for skyla.