Edies aunt Sarah will be doing a skydive on Sunday 8th march 2026 To raise money for Edie who is fighting CLN2 Batten Disease. 

CLN2 Batten disease is estimated to affect about 40 youngsters in the UK, with average life expectancy about 10 years. Those with the condition appear to develop normally for the first few years of life, but can then deteriorate quickly and experience progressive dementia

Any money raised will go towards any equipment/medical aids/sensory toys and things that we need for Edie to make life as easy and comfortable as possible ❤️ thank you