Marc was diagnosed with ALS in November of 2016. ALS isalso known as Lou Gehrig's disease which is a nervous system disease that weakens muscles and impacts physical funtion. Often it has a gradual onset with painless, progressive muscle weakeness and eventually takes away the ability to walk, dress, write, speak, swallow and breathe. When the breathing muscles become affected, permanent ventilator support is needed for survival. There is no cure at this time and half of ALS victims live 3 or more years after the diagnosis. There can be significant costs for medical care, equipment and home health caregiving as the disease progresses. As a family, we are reaching out to ask you for your financial support to help defry medical costs his family is incurring as his ALS progresses.
His wife is a nurse and maintains her fulltime 12 hour shifts at the hospital in order to pay bills. When she comes home, her day does not stop. One could say she is working around the clock. I know that is Marc's opinion. He is totally dependent on someone to do those activities that we sometimes take for granted.
Family members have been able help provide care day and night, over weekends and on demand. Caregiving consists of personal care, assistance with mobility, transportation, housework, and grocery shopping. Since Alice is employed outside the home as the sole provider, it is adding more demands, responsibilities and stress.
It is our hope and prayer that Alice might be able to take care of herself both physically and emotionally knowing she has the finances to afford the caregiving he deserves on a 24/7 basis. We have a goal of 15K and hope we can raise the finances soon to help with medical expenses and to assist Marc with the daily care he needs.