In August of 2016, our father, Silverio, was diagnosed with a terrible disease called #ALS, also known as Lou Gehrig’s Disease. For those of you who are unfamiliar with this killer, ALS or amyotrophic laterals sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord, weakening muscles and limiting motor skills.
You may recall the #IceBucketChallenge and the temporary paralysis felt by those that participated in the Challenge. Well imagine having ice-cold water dumped on you non-stop and that’s what people afflicted with this disease have to fight through on a constant basis. The progression of this disease leaves people without the ability to speak, eat, move and breathe and comes with it a life expectancy between two to five years for 80% of cases. As of now there is no cure for ALS and the prospects for a cure in the short term are very bleak.
Like so many others fighting through ALS, our Father is no longer able to walk or carry out daily functions that all would consider normal. He is the second oldest in a large family of seven siblings and has three of his own children and seven grandchildren. If you know Silverio, you know him as a family man who dedicated himself to raising his kids and grandkids and loves nothing more than some great music and sports. He’s a Salsero who loves music and dancing. Sadly, he will never dance again. In a short time, he’s gone from a cane, to a walker, to a wheelchair.
Unfortunately he now needs a customized, mobile wheelchair and a van to transport him, the chair and his caregivers. We are asking for support to obtain this necessary equipment.
We feel strongly that these resources should be available to all people fighting this terrible disease no matter what their financial situation. Once we no longer need it, we are committed to donating all of his equipment to the #ALSySociety so that other families are better equipped to help their own loved ones.
We are asking for support in this battle so that our Father can enjoy himself to the best of his limitations. Our family and especially Silverio would greatly appreciate any donations given. Even if you cannot donate at this time, just sharing and reposting this would mean a lot to all of us. Thank you for taking out the time to read this.
Help spread the word so we can once and for all end the devastating effects of ALS!
#ALS
#LouGehrig
#NYYankees
#ALSCaregivers
#ALSSociety
#ALSTherapyDevelopmentInstitute
#EndALS
#IceBucketChallenge
You may recall the #IceBucketChallenge and the temporary paralysis felt by those that participated in the Challenge. Well imagine having ice-cold water dumped on you non-stop and that’s what people afflicted with this disease have to fight through on a constant basis. The progression of this disease leaves people without the ability to speak, eat, move and breathe and comes with it a life expectancy between two to five years for 80% of cases. As of now there is no cure for ALS and the prospects for a cure in the short term are very bleak.
Like so many others fighting through ALS, our Father is no longer able to walk or carry out daily functions that all would consider normal. He is the second oldest in a large family of seven siblings and has three of his own children and seven grandchildren. If you know Silverio, you know him as a family man who dedicated himself to raising his kids and grandkids and loves nothing more than some great music and sports. He’s a Salsero who loves music and dancing. Sadly, he will never dance again. In a short time, he’s gone from a cane, to a walker, to a wheelchair.
Unfortunately he now needs a customized, mobile wheelchair and a van to transport him, the chair and his caregivers. We are asking for support to obtain this necessary equipment.
We feel strongly that these resources should be available to all people fighting this terrible disease no matter what their financial situation. Once we no longer need it, we are committed to donating all of his equipment to the #ALSySociety so that other families are better equipped to help their own loved ones.
We are asking for support in this battle so that our Father can enjoy himself to the best of his limitations. Our family and especially Silverio would greatly appreciate any donations given. Even if you cannot donate at this time, just sharing and reposting this would mean a lot to all of us. Thank you for taking out the time to read this.
Help spread the word so we can once and for all end the devastating effects of ALS!
#ALS
#LouGehrig
#NYYankees
#ALSCaregivers
#ALSSociety
#ALSTherapyDevelopmentInstitute
#EndALS
#IceBucketChallenge
Organizer
Noemi Nieves
Organizer
Hillside, NJ