Liam had experienced seizures twice before, both times while falling asleep. However, this one seemed to be the worst by far. Liam's parents tried to communicate with him but their normally energetic son was unresponsive for over 15 minutes.
Hector called 9-1-1 and rushed to the hospital when the ambulance came. After extensive testing, the doctors had answers and the news wasn't good.
Liam has Benign Rolandic Epilepsy. He has a spot on his brain that will likely cause developmental delays down the line. He's at risk to go into a seizure anytime he reaches the REM cycle, the time most people experience sweet dreams.
The good news is that many children outgrow the syndrome by age 18. The bad news for Liam is that the symptoms will likely get worse before they get better, peaking around age 8 or 9.
Liam just turned 4 years old. He's a great big brother who would ride his bike, throw rocks into the pond and search for bugs all day long if he could. He's the cuddliest kid you'll ever meet, giving hugs with an affection that is rarely found in a little boy his age.
In a perfect world, Liam could take a pill that would make the seizures go away forever. But we all know this world isn't perfect.
In Liam's case, doctors have prescribed a pill they hope will do just that, though. The problem is that the prescription cost is $1,000 monthly, and that's after insurance kicks in. Even after the $5,000 deductible is met, the monthly cost will be over $300. With years of prescriptions in Liam's future, that cost is going to add up significantly.
When Hector told me this, I couldn't believe it. What can one tiny pill do that's worth $1,000 a month? Essentially, it will control his seizures and hopefully, prevent permanent brain damage.
I'm starting this page to help raise money for Liam's medication and treatment because his parents, Hector and Missy, would never ask for help themselves. They are my brother and sister-in-law, as well as the most selfless, loving individuals I know. They could really use a hand to help lift the financial burden.
Hector and Missy adopted Liam 4 years ago hoping to protect him, love him unconditionally and give him a better life. We can take an active role in making sure that happens.
Help us hit the goal so Liam can rest easy at night and dream the sweet dreams that little boys are supposed to dream. I'm setting the goal at $9,100 to help cover a year of medication, MRI's, the ambulance fee and seizure detection devices.
Thank you to everyone who reads, shares and donates.
- Nastja Canovas
- Sharon Moran
- Lisa Matulis-Thomajan
- Tiffany Kyser
- Bobby and Cindy Neal
Organizer and beneficiary
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