Fighting Battles..Winning Battles….Fighting Battles….Winning Battles………Fighting….Battles……Winning….Battles……So so so so tired of Fighting Battles ,although I have never been battling, it’s God doing the hard stuff and creating miracle after miracle, he is Winning every battle for me,but I’m tired. My precious family and friends are tired.Bills keep coming in, from medical bills, to uncovered prescriptions, to ways to get meals covered and get the kids to school (with no bus system up here)and more bills. Just bills,so many I can’t catch my breath.
We knew 3 years ago, that my diagnosis of a rare and aggressive cancer that goes by S.N.U.C. Sinonasal Undifferentiated Carcinoma, was going to be a fight. We were told that only around 2,000 people in the U.S get it, most never live through it, and those who do don’t live past 5 years. That it continues to come back (aggressively) into the sinus track, and eats away at the bones,skull,eye socket and vision, and it usually has little to no symptoms until it’s too far progressed to do anything about it. My first round with it,was an absolute undeniable Miracle from God,as I had people all over the world praying for this large tumor between my eyes,and was told by Doctors that if we beat this, my face would need complete plastic surgery to replace the damage it had done to my face already(broken eye sockets,skull and sinus’s eaten away, and no bone left to hold my eye sockets/skull together) I had one small chemo and saw no difference yet(obviously). But after prayer from many all over the world and a night of intense deep prayer dealing with my own issues. I woke up the next morning,and the tumor was completely gone.Gone. And what was left was perfect. No need for surgery. It was literally a “Nose Job from God” hahaha! I could continue to tell you the rest, but it’s three years worth and contains chemo and radiation I chose to do in case one tiny cell was left.Which created so many more issues, including frying my pituitary gland, messing my thyroid up so badly, I have been basically bed-ridden since then. Having brain and memory fogs where the tumor was ect. 2 surgeries to correct radiation that fried my sinuses so I couldn’t breathe,and eye surgery that opened up my tear ducts because my tears had no where to go!(if you want the long longer long version you can read my blog I have kept on Facebook since the beginning.
https://www.facebook.com/317660572404248/posts/1100219937481637/?d=n
ANYWAY….after I thought we had made it through, over two years with no reoccurrences, in May I began having my eye puffy for no reason. I went in immediately,they did MRI/CT and there was a little black spot where there shouldn’t be. So in June I had brain surgery right away and they discovered the cancer had fully returned and spent hours taking out every inch of it.
And they got it, thank you Jesus!!!
In the midst of all of this, Daniel who had worked all Corona, was laid off because the company was going under. So two of us could not work! For a limited time unemployment was the biggest blessing because we were surviving while Daniel was taking care of the kids and I was healing and bed-ridden. While he ,as the caretaking husband, tried to pretend his heart wasn’t breaking through all of this also,as he now couldn’t even provide for his family. But blessing after blessing came through and Jesus took care of our every need! Even as both of our cars broke down, and then the replacement cars broke down too, hahaha!! thankfully we were blessed and have one great working car now! And one that just needs minor repairs.
Then life happened again ;(
About a month ago I started feeling “sick” again. More like thyroid sick. But back to being bed-ridden, losing weight, and severe headaches. My three month scan wasn’t even for a couple more weeks. So I called my incredible doctors at Seattle Cancer Care Alliance and they got me in. Scans aren’t good ;( I have a growing tumor on my pituitary gland (which is mimicking all of my cancer symptoms) and I have several dark spots all around it. They aren’t positive, but it looks like the cancer is back,along with a tumor growing on my pituitary gland ;( So I have been going through multiple scans/tests and the earliest they could set my brain surgery is for December 8th. With Covid effecting schedules and the need for now three surgeons, the ENT Surgeon,The Neurosurgeon, and the Nuero Endocrine doctor, that was the soonest they could get all three together. My endo thyroid blood scans have come back off the charts again and my headaches feel like I’m getting hit by bricks. When I sleep I feel better, and I have good and bad days, but in general my frontal lobe is being effected so much that I am having issues writing(this took two hours) keeping in touch with people by writing back, and mood swings that make every noise sound like a parade in my head.
In the meantime, trying to take care of the kids, get cars fixed, figure out how to pay bills and get Daniel a good job.For weeks we were getting no responses on resumes, jobs searches ect. It was ridiculous. BUT finally Friday Daniel had a great interview(his 3rd with them),for a great company and we are almost 100% positive he got it and will be receiving a call tomorrow!! :) :)
I’m the meantime though, with the holidays, he probably won’t start for a tiny bit and his checks won’t start coming in until Later in December, so I’m spending all my days freaking about money and applying through state aid that takes weeks-months to attain. And it has become nearly impossible with my brain not working and Daniel taking care of the kids, job application’s, surviving .
I swore I would never do another one of these ;(
And to all the people that have helped so much already, who are going through their own devastating losses, financial burdens, who have made us several meals, brought groceries in the pouring rain,donated cars,set Christmas up for us,given to us when I’m pretty sure they needed it more...DON’T DONATE!! You have already given us blessings and hope on days it seemed really really bleak and unbreathable!! <3 <3
But to the people that asked what they could do to help, or where they could send a donation or what they could do from far away, this is a place to do it. No matter what God will bless us ,but anything helps!! Even sharing this post helps!!We lasted on savings a long time, but this third “Reveal” just dropped us on the ground and it’s feeling really hard to get back up ;( Also every word of encouragement means the world to us and we know we will get through this again because “there isn’t another option”……Jesus brought us miracles, and we live in a house of miracles!
We knew 3 years ago, that my diagnosis of a rare and aggressive cancer that goes by S.N.U.C. Sinonasal Undifferentiated Carcinoma, was going to be a fight. We were told that only around 2,000 people in the U.S get it, most never live through it, and those who do don’t live past 5 years. That it continues to come back (aggressively) into the sinus track, and eats away at the bones,skull,eye socket and vision, and it usually has little to no symptoms until it’s too far progressed to do anything about it. My first round with it,was an absolute undeniable Miracle from God,as I had people all over the world praying for this large tumor between my eyes,and was told by Doctors that if we beat this, my face would need complete plastic surgery to replace the damage it had done to my face already(broken eye sockets,skull and sinus’s eaten away, and no bone left to hold my eye sockets/skull together) I had one small chemo and saw no difference yet(obviously). But after prayer from many all over the world and a night of intense deep prayer dealing with my own issues. I woke up the next morning,and the tumor was completely gone.Gone. And what was left was perfect. No need for surgery. It was literally a “Nose Job from God” hahaha! I could continue to tell you the rest, but it’s three years worth and contains chemo and radiation I chose to do in case one tiny cell was left.Which created so many more issues, including frying my pituitary gland, messing my thyroid up so badly, I have been basically bed-ridden since then. Having brain and memory fogs where the tumor was ect. 2 surgeries to correct radiation that fried my sinuses so I couldn’t breathe,and eye surgery that opened up my tear ducts because my tears had no where to go!(if you want the long longer long version you can read my blog I have kept on Facebook since the beginning.
https://www.facebook.com/317660572404248/posts/1100219937481637/?d=n
ANYWAY….after I thought we had made it through, over two years with no reoccurrences, in May I began having my eye puffy for no reason. I went in immediately,they did MRI/CT and there was a little black spot where there shouldn’t be. So in June I had brain surgery right away and they discovered the cancer had fully returned and spent hours taking out every inch of it.
And they got it, thank you Jesus!!!
In the midst of all of this, Daniel who had worked all Corona, was laid off because the company was going under. So two of us could not work! For a limited time unemployment was the biggest blessing because we were surviving while Daniel was taking care of the kids and I was healing and bed-ridden. While he ,as the caretaking husband, tried to pretend his heart wasn’t breaking through all of this also,as he now couldn’t even provide for his family. But blessing after blessing came through and Jesus took care of our every need! Even as both of our cars broke down, and then the replacement cars broke down too, hahaha!! thankfully we were blessed and have one great working car now! And one that just needs minor repairs.
Then life happened again ;(
About a month ago I started feeling “sick” again. More like thyroid sick. But back to being bed-ridden, losing weight, and severe headaches. My three month scan wasn’t even for a couple more weeks. So I called my incredible doctors at Seattle Cancer Care Alliance and they got me in. Scans aren’t good ;( I have a growing tumor on my pituitary gland (which is mimicking all of my cancer symptoms) and I have several dark spots all around it. They aren’t positive, but it looks like the cancer is back,along with a tumor growing on my pituitary gland ;( So I have been going through multiple scans/tests and the earliest they could set my brain surgery is for December 8th. With Covid effecting schedules and the need for now three surgeons, the ENT Surgeon,The Neurosurgeon, and the Nuero Endocrine doctor, that was the soonest they could get all three together. My endo thyroid blood scans have come back off the charts again and my headaches feel like I’m getting hit by bricks. When I sleep I feel better, and I have good and bad days, but in general my frontal lobe is being effected so much that I am having issues writing(this took two hours) keeping in touch with people by writing back, and mood swings that make every noise sound like a parade in my head.
In the meantime, trying to take care of the kids, get cars fixed, figure out how to pay bills and get Daniel a good job.For weeks we were getting no responses on resumes, jobs searches ect. It was ridiculous. BUT finally Friday Daniel had a great interview(his 3rd with them),for a great company and we are almost 100% positive he got it and will be receiving a call tomorrow!! :) :)
I’m the meantime though, with the holidays, he probably won’t start for a tiny bit and his checks won’t start coming in until Later in December, so I’m spending all my days freaking about money and applying through state aid that takes weeks-months to attain. And it has become nearly impossible with my brain not working and Daniel taking care of the kids, job application’s, surviving .
I swore I would never do another one of these ;(
And to all the people that have helped so much already, who are going through their own devastating losses, financial burdens, who have made us several meals, brought groceries in the pouring rain,donated cars,set Christmas up for us,given to us when I’m pretty sure they needed it more...DON’T DONATE!! You have already given us blessings and hope on days it seemed really really bleak and unbreathable!! <3 <3
But to the people that asked what they could do to help, or where they could send a donation or what they could do from far away, this is a place to do it. No matter what God will bless us ,but anything helps!! Even sharing this post helps!!We lasted on savings a long time, but this third “Reveal” just dropped us on the ground and it’s feeling really hard to get back up ;( Also every word of encouragement means the world to us and we know we will get through this again because “there isn’t another option”……Jesus brought us miracles, and we live in a house of miracles!
Organizer and beneficiary
Daniel Ward
Beneficiary