Shay has been diagnosed with a very rare genetic disease called Neimann Pick Type A, which is a devastating neurodegenerative disease caused by an accumulation of liquids in the brain, liver and spleen. There is no treatment, only the symptoms can be treated. Shay needs equipment now to keep his brain stimulated, and make his quality of life better. Money raised will go towards a special buggy, bath seat, car seat and sensory equipment which he so desperately needs. It's vital Shay has this equipment now, so he can enjoy the very basic joys in life. 4 of Shays uncles are training to completion a charity row from Carteret, France to Guernsey. All money raised and donated to the row will go directly to Shay and his parents, Hanna and Yhan, so they can give him a more comfortable live. Please... given generously. We only have one life.