We are almost there now!
Shaun has an appointment on 8th October in London, which if all goes well should see him start the treatment process shortly after.
We will keep you posted on the progress, but on behalf of Shaun and the rest of our family I just want to express our gratitude to everyone who has donated. Words are never enough for stuff like this, but THANK-YOU!!!!!!!!
*** IMPORTANT UPDATE ***
Shaun has a lifeline but we urgently need your help, as this is time critical.
After previously being given some hope of HSCT in the UK on the NHS, he was turned down in January by the NHS and his original diagnosis was being questioned. After months of waiting and constantly chasing, his original diagnosis was then re-confirmed in June and he was referred to the private consultant who he saw earlier this week. He has now been approved for the HSCT treatment in the UK, but at a cost of £70,000. Whilst it is fantastic news that he can now get the treatment, once again the barrier is cost and so we need to start fundraising again.
As Shaun is deteriorating at a rapid rate (he now uses a wheelchair and struggles to write his own name) he must have the treatment as soon as possible and so he cannot wait for several months for this, as he will be too disabled to meet the criteria.
Please spread the word and offer any help you can, as he urgently needs to raise the funds for treatment.
*** END OF UPDATE ***
Anyone who knows my brother Shaun will know that he would do anything to help others. Now it is our turn to help him. Shaun is far too proud to ask anyone for help, so I am putting this out there for him.
After more than 2 years of tests, Shaun was finally diagnosed with Primary Progressive Multiple Sclerosis in June 2016. At this point the NHS gave up on Shaun and effectively left him to rot.
Shaun has worked a manual job his entire adult life. He has also played hockey since school and has been a keen snowboarder for the past 20 years. Shaun can no longer do ANY of these things. In fact he now struggles to even walk. Everything that was a passion in his life has been cruelly taken away from him.
There is currently no cure for PPMS and it is considered a minority illness. His best option right now is HSCT (hematopoietic stem cell transplant). Whilst this treatment cannot completely reverse Shaun's current physical state, it can prevent progression and may also remove some symptoms which are caused by inflammation, rather than scarring. As he continues to deteriorate month by month, time is both critical and precious.
I hate seeing my brother in such a terrible physical state. I hate seeing him so frustrated and angry that he has effectively been abandoned by the NHS. I hate that him being able to get any hope of treatment all comes down to cash.
Time is not on Shaun's side right now, as the sooner he can get the treatment, the sooner he can potenitally halt the progression of his MS.
We have already raised some money via Just Giving, so I will be moving that donation to this page.
Please help Shaun. Any donation will mean the world to him.
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