Where to start this and it not sound like an AA meeting....haha
I am Shannon and I have Cystic Fibrosis. Well, good try anyway. I was diagnosed with CF at 5 months old. Life with CF is all I know, it's my normal and I rock it! When I was born the life expectancy of someone with CF was 12. With the progress in research, new medicines and better treatment options the life expectancy has increased to around 41 years. That of course is just a number but it does show you the improvemnent in care over the years. I am 38 year old. I am thankful for every birthday I have because it means I am kicking CFs butt and defying the odds. You can stay up to date with me and my health by following my blog at CF Happens .
CF is a progressive lung disease with a multitude of other problems to boot. I have the digestive component as well. I am pancreatic insufficient which means that my pancreas doesn't work correctly. My pancreas doesn't make all the digestive enzymes I need to digest my food therefore I have to take enzymes (pills) every time I eat.
Now on to the reason for setting up this GoFundMe page. My CF has progressed to the point of needing to be evaluated for transplant. Double lung transplant in Cystic Fibrosis patients is very common as the lungs get sicker and sicker. We have chosen Barnes-Jewish Hospital in St. Louis.
We have started fundraising for furture medical expenses associated with lung transplant. Yes, I have insurance and it will pay for most everything. Most transplant centers require you to have a lump sum of money in an account to cover any surprise costs, copays for post transplant medicines, etc. We are working on getting as much money as possible into an account to prepared as best we can for the transplant process. Having the money in an account will hopefully make the financial aspect of transplant a non stressful aspect. We have to be prepared to cover a relocation to be close to Barnes. With this money we will also be able to cover living expenses, food, gas money, bills, etc post-transplant for those that take time off of work to care for me, one being my husband obviously. I don't want anyone stressing over money while we are working hard on my recovery after transplant. I'm a planner and I want to attempt to make the transplant process as smooth as possible. I know there will be bumps in the road but having this safety net will help cushion the blows.
There aren't words enough to express how thankful I am for everyone that has already donated to Shannonigans Lung Fund. It means so much to our family. Thank you to everyone who continues to pray for me, my health and my family. They are greatly appreciated. You all will forever be a part of my heart.