Support Families Affected by ReNU Syndrome in the United Kingdom.

We are a group of dedicated parents with children and young adults recently diagnosed with ReNU Syndrome, a newly discovered condition impacting around 60 individuals in the UK. Together, along with supportive volunteers, including the geneticist who identified this syndrome, we are establishing the first UK branch of our charity. Our mission is to raise awareness, educate the public, and provide vital support to families navigating this journey.

Thanks to the generosity of our families, friends, and the public, we have raised sufficient funds to officially register our charity. Now, we need your help to organize our very first ReNU family meet-up in June and launch our charity effectively.

Every donation, no matter the amount, will make a significant difference. All funds will be deposited into the UK ReNU bank account, and we are committed to ensuring transparency with receipts provided upon request.

Please visit our website for more information about ReNU Syndrome: www.renusyndromeuk.org (http://www.renusyndromeuk.org)

If you are able to assist us, please donate and help spread the word. Your support means everything to us!

Thank you so much!