Hi we are parents to newly diagnosed children and young adults with ReNU Syndrome.

The syndrome is newly discovered and currently there are approximately 40 children/adults in the UK but there are thousands more. We as a group of parents and some wonderful charity, financial and corporate volunteers including the geneticist who found the syndrome are setting up the first UK arm of the charity so we can raise awareness, educate and support families. We cannot register as a charity until we have £5000 so we are currently trying to raise the funds obviously we need a lot more than this to be able to provide the support. Please see more details of the condition on the main international website www.renusyndrome.org

If you are able to help us please donate no matter how small. All funds will be deposited into the UK ReNU bank account and receipts provided for transparency. Thank you so much!