For the past 3 and a half years we have been chasing what has been making me sicker each passing day, going from specialist to specialist, finding out nothing. Ultimately the doctors started believing it was all in my head, (which is because dysautonomia is not well known by many medical professionals). Until a few months ago, my doctor who has never doubted me, performed an orthostatic blood pressure test, where they would take my BP laying down then sit me up and take my BP again 5 minutes later and then standing. Her reaction was a mixture of surprise and relief. Surprise for not having seen this during one of the dozens of visits prior to this particular one. Relief that we finally had a name and direction to go. So, I have officially been diagnosed with Dysautonomia and I am about to embark on the search for exactly which type of dysautonomia it is, as there are many. This July we are going to the Mayo Clinic In Minnesota, where they will hopefully be able to help us get on the right track. Dysautonomia is the dysfunction of the autonomic nervous system or ANS. The autonomic nervous system effects your whole body.
Dysautonomia symptoms may include....
Orthostatic Intolerance (inability to remain upright)
Syncope (fainting/near fainting)
Tachycardia (fast heart rate)
Bradycardia (slow heart rate)
Low Blood Pressure
Shortness of Breath
Temperature Regulation Problems
Inability to concentrate
Difficulty with recall
Hypersensitivity to sensory stimulation
Any contribution you can make, will help tremendously and is greatly appreciated.
The money raised will go towards getting paired with a service dog from My Angles with Paws and help with medical expenses, like the trip to the Mayo Clinic.
Thank you for your support,
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