Hello my name is Helen

i just wanted to give you some background about our amazing daughter Phoebe !

Phoebe didn’t have the best start to life by been let down by the NHS and there neglect.

We needed a c section due to my placenta wasn’t working correctly at 30 weeks, due to the lack of availability for a c section we was left to wait and see and be “monitored “ if you could call it that.

i was dismissed as a dramatic woman when I express numerous concerns.

Then the trauma began after been sent home and been told that spikes in phoebes heart beat was normal and my feeling of been unwell was me been dramatic, that evening my placenta started to bleed at home.

Luckily my Husband got us to hospital before my placenta exploded and we had a emergency c section at the reluctance of the midwife team who said it was my bladder on the scan pressing on my womb, it wasn’t it was my placenta getting ready to explode.

I can not express the horror of this situation.

while been rushed to surgery my husband was told to wait.

Phoebe was born not breathing and my husband had to force his way to her and as he held her hand she took her first breath, it was a miracle!

The doctors was amazed that me and Phoebe made it.

It was long recovery but we was thankful to have our little girl.

Born at just 4lbs 2oz

Years later we always knew something was different with Phoebe but the hospital offered no support and dismissed any concerns.

It took 4 long years to get a diagnosis and finally at the age of 6 we had a diagnosis of NON verbal severe Autism with a learning disability and double incontinence, with a mental age of 4

phoebe is now 8 and remains non verbal.

Phoebe has difficulty expressing her needs and can quickly become frustrated and overwhelmed.

We have spent years fighting the system for Speach and language therapy all to fall on deaf ears and the service taken away because we choose to home school due to another failure in the system.

We have been given an apology by the education department due to they don’t have a school space what is adequate to meet all of Phoebes complex needs.

Yet again another battle to face to get absolute no wear.

we do our best as parents to give Phoebe all the love and support we can to give her an enriched and happy life.

Phoebe absolutely loves going to soft play and enjoys sensory rooms when they are available.

So here’s were you can help….

we ask if you could donate even a small amount towards helping fund sensory room equipment to create a safe space for her to relax and re regulate during difficult times.

we are also wanting to fund a specialist bike so she can enjoy bike rides out in beautiful surroundings to enjoy the things regular kids get to experience.

we would much appreciate any donation made and would like to thank you in advance!

Thank You