Send Leah to Therapy

Hi there, my name is Devon and I am Leah's mama. Leah was diagnosed at 8 days old with a rare genetic condition called Dup15q Syndrome - a duplication on her 15th chromosome and HIE - Hypoxic ischemic encephalopathy, a brain dysfunction that affects small sections all over her brain.   Due to this diagnosis Leah is battling sensory issues, infantile spasms, Epilepsy, autism, cognitive and developmental delays and so much more. 

We were blessed to be able to attend two intensive physical therapies in 2022 that really changed Leah's world. The gains she had coming out of these therapies were tremendous and if you follow along on my socials you have seen her working so hard. We have the opportunity to attend a couple more this year, but unfortunately, these intensive therapies are NOT covered by insurance and are upwards of $5,000. I have done the work looking for quality care for Leah and truly believe we have found the right team for her goals.

We have been waitlisted by NAPA Center Los Angeles for 8 sessions this year, which means we could get the call at any time that Leah is next in line. If that were to happen for her right now though, we would have to decline due to the cost - which as a parent is absolutely heartbreaking. We have a spot at Climb in Tennessee again this July and are truly counting our blessings to be able to work with Chandler and Erin again - but the cost of getting to TN is... a COST. So here we are, humbling ourselves, asking for help in order to send Leah to therapy. The truth is that we will likely be fundraising for Leah a lot over the course of her life but the first three years are truly the most imperative for building the skills she will need to give her the quality of life she is fighting so hard for.

We are so blessed by our village, truly! As a mom, I could not do this without the people that hold me up.