When Ollie was born, they placed him onto my chest and we could instantly see something was not right. The left side of his face was extremely swollen. This came as a complete shock to both Ethan and I as our ultrasounds had shown no abnormality.
Those first couple of days were a whirlwind of specialists and tests. They ultimately gave us the news that Ollie had multiple lymph producing cysts within his cheek. This is what they call a Lymphatic Malformation. As of right now the treatment options are very limited.
When Ollie was six months, he had his first surgery (sclerotherapy) . At nine months, we tried again. These proved to not be very successful and we decided to hold off all treatment until he was older.
Ollie did very well until about last August. At that time we ended up having a weeks stay at our local children's hospital with a raging case of cellulitis within his cheek. Since then Ollie has been on and off antibiotics. With the doctors here at a loss of how to help him, we are looking into a second opinion.
We have decided to reach out to Boston Children's Hospital. They have their own Vascular anomalies clinic that is linked with Harvard. We are hoping they will have more insight into possible treatment options. With that being said, the second opinion will take money that we simply don't have at the moment. If you feel led, we would greatly appreciate a financial donation.
Thank you for reading Oliver's Story!
Ethan and Hannah (Oliver's parents)
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