izaiahs wish list

Hi this is Izaiah hes 9 years old he is the most happiest boy you will ever meet hes quite sick but he never lets it get him down he goes around singing at the top of his lung daily he loves playing outside and making the most of his time with his family he always has a big smile on his face especially when he meets new people he love going to CRC daily and helping out his class mates he just always happy but unfortunately Izaiah is now under palliative care in Crumlin hospital and Lauralynn Hospice due to his illness and were all devastated beyond words we are doing a go fund me to firstly get another opinion and secondly to make his wishes come true before hes not well enough to do them with his family especially his brothers and sisters I as Izaiahs mum want all his dreams to come true hes been trough so much in his short life and its hard daily for him being on oxygen getting all his meds his daily injections among everything else hes needs wheelchair now to get around Izaiah tell me daily he wants to go to Florida on holiday to go to Disneyland want to go to see giant Aquarium to go in race car wants to open a shop and sell prime wants to go on sail boat and wants to go to Lego land and wildlife park among other things he would love to go see with we call IZZYS WISH LIST and also travel to England for second opinion

Izaiah was born with hyperplastic left heart syndrome

Mitral stenosis LV hypoplasia Aortic stenosis

Russel silver syndrome Shones syndrome

Pulmonary hypertension in both lungs

he also suffers with hypoglycaemia Izaiah has been fighting since birth hes had so many surgeries;

.hybrid procedure were they stented his artery bands and stented his arterial duct

.Damus kaye stansel operation with modified shunt and arch repair

.Balloon atrial septostomy

.Bidirectional glen

.and countless cardiac catheterisations

.Left arm repair

.feeding tube mickey butten to feed him

Izaiah also has Maligment hyperpyrexia syndrome so every time hes goes under Anesthetic he at such high risk

UNFORTUNATELY Izaiah is not a candidate for the next stage surgery the Fontan due to his heart pump failing pulmonary hypertension and his other complications

Therefore hes been placed on palliative care as his right pump in his heart has failed more and we went fore a meeting for heart transplant but told its really not likely as he wont get on the list due to pulmonary pressure among other complications so we want to make his wishes come true keep that beautiful smile on Izaiahs face