Second chance for Ansgar

Hi my name is Max and I start this fundraising for my little son Ansgar.

Beside father to Ansgar iam step father to 9 years old Ben and 7 years old Maria. Iam also married to the mother of this little three, Xenia. Together we life in a cosy Swedish house at the countryside.

But our story starts a couple of years ago in Germany. There our smallest guy Ansgar was born. The birth was uncomplicated and all seemed fine. Till the first health check up. Our doctor recognized a strange noise in the heartbeat. After more doctor visits we ended up in the hospital at the intensive care unit.

This was a horrible period for us all. The little boy separated from his parents, the parents in deep sorrow and the big sister and brother in the total unknown.

After two weeks Ansgar could leave this place. The doctors saw that Ansgar had a really complicated and rare heart issue. What ment for us nothing good. In this two weeks the doctors got a good picture of his issues but couldn't come up with a final solution. For sure was that he need a surgery but what exactly they should do they needed to decide in surgery.

We needed to wait till he was 8 months.

We waited for the day of the surgery with the hope to go back to normal or better said, start a normal. The time to the surgery we need to give Ansgar much medicine, check his poop and pee every day and write down and document this

things.

The day of the surgery was there. Our hope was likely big as our sorrow.

After the surgery Ansgar was really, really bad. So bad that his heart stoped to beat in front of my eyes. I will never forget this dark moment where nurses kick me out of my son's room while doctors in panic start to reanimate my little innocent boy.

He got a bit better but his situation was still critical.

His first Christmas was sleeping with high doses of drugs, connected to a whole lot of machines what keep him alive and check his vitality.

It was a Horrortrip and we all was traped in it. Everyone, Ansgar, my wife and me, our big kids what was so afraid that something happen to him, the grandmother's and father's, all aunt's, uncle's and friends what shared our pain. We got awesome support. I remember where everyone we know lighted a candle for Ansgar and his struggle and send a picture of it to us.

After new year Ansgar got better and better. In the middle of januari it was time to leave. It felt like coming home from a dark prison with unknown ending. Finally we was home.

But Ansgar needed to start things from the beginning. There he was like not even a year. He needed to learn again to sitt on his own, he started to drink milk again, he couldn't eat baby food anymore like he did before the surgery. He had to start all over again it seemed.

Our plan was already before Ansgars birth that we want move to Sweden. Also after the bad news we thought the surgery will fix the problem and in Sweden there is also a great healthcare.

Ansgar was a bit back but his heart issue was gone. Everything looked good så far and we thought we were done with our quest.

We moved to Sweden and got in touch with a doctor who should take care of Ansgar. If you had a heart issue you kind of stay a patient your whole life. The doctor made us understand quite early that something is wrong with Ansgar. He could there still not walk on his own. The time was running and Ansgar was developing but not in the time he should. He grows bigger and get older but he isn't really were he should be.

Now our little warrior is almost 4 years old. He have really hard time with the language, he have still not really uncoded how it works. He uses single words and can surprise us sometimes but he isn't there he should. In the same time he gets really frustrated about his "not able to do". This "not able to do" shows in his speak, in the motoric development and also in his social behavior. He is really frustrated that none understands him and that he don't seem to understand anyone. He is becoming better with everything bit for bit but we are scared it isn't enough.

Now we come to our question for help.

The therapies in Sweden have still not started but we have big hope in it. Anyway we feel unsecured in this situation. Ansgar is getting older, time is marching on and we have no results after 2 years under Swedish healthcare.

We wonder if the German doctors, who know his history from the beginning could help him better and want at least check it up without burning down all bridges in Sweden.

We want to start a APP, an audio psycho phonologie therapie with Ansgar. Or at least check up this alternative and se if and how it support him.

Myself had problems like Ansgar has when I was a kid. But they wasn't that serious like his. But it seemed to helped me a lot with getting together my difficulties, why shouldn't it help him?!

This APP therapie works with the tomatis method. Where you trigger the brain waves with classic musik and sounds, like the mothers voice. Because I was in therapie in the Atlantis center in Belgium we would like to go there too. They established in the 80s and had big succe since that.

A private medical treatment in a other country is not for free, therefore we need your help and wish that you support us.

www.atlantis-vzw.com/center.html

We don't know if our path is right but we will do everything to find out...please help us with this!