Sebastian's 25km swim for Freddie

Sebastian’s 25km Swim for Freddie

This June, Sebastian is taking on an incredible challenge: swimming 25km (15.5 miles) — all to raise hope and funds for his extraordinary cousin, Freddie.

Freddie was diagnosed in 2023 with INAD (Infantile Neuroaxonal Dystrophy) — a devastating, 1 in a million degenerative condition with no known cure and a heartbreaking life expectancy of just 5–10 years.

Despite his young age, Freddie has already faced unimaginable challenges. He can no longer sit up, and recently had to be fitted with a feeding tube. But amidst the heartbreak, there is a glimmer of hope. A promising clinical trial is within reach — but it needs urgent funding to move forward.

Sebastian is pushing himself to the limit, juggling training with daily life, because he knows that every metre he swims brings Freddie closer to the chance he deserves.

Let’s come together and be part of this miracle in the making.

Please donate, share, and spread the word. Every penny counts.

Time is precious — and so is Freddie.