Sean With Lewy

This is for my best friend Sean who has just received a terminal illness diagnosis, Lewy Body Dementia.

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UPDATE: AUGUST 5, 2017

Posted by Sean:
We're going to make it.

I can't properly express the magnitude of how your generosity has aided us.  Without your help, I would not be here today.  There are no words for my gratitude.

Please, no more individual donations.  You did it.  We did it.  I do have monthly med costs that Medicaid won't cover and anything saved here will go towards investing in Alta and Sarah's futures so I am open to any altruistic company that would like to help.

I'm am truly humbled for your sacrifices in order to aid me.

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I met Sean on Reddit in 2015. I was low on funds and needed my cars’ alternator fixed. Sean saw my post and offered to avail his garage, tools, and car knowledge to help me out.

He changed my life that day.

His help and encouragement to learn new skills and do things for myself taught me valuable lessons.  I was capable of doing ANYTHING I set my mind to and that good people are out there and I am not the only one; I have heard stories from many others Sean has helped off the Reddit community and in his life.  I’m looking for all of them now to help pay Sean back in his time of need.

Lewy Body Dementia is a death sentence. Watch the video below for more information about LBD or go to www.lbda.org.





Robin Williams had LDB and his wife describes it as a terrorist taking over the sufferer’s brain and robbing them of their life. You can read her essay here:

http://www.neurology.org/content/87/13/1308.full


She describes not only how hard it is for someone who has LBD but also how hard it is on their caregiver. For Sean, it is his wife Sarah who he has been her caregiver for the last 5 years as she has struggled with her own auto-immune disease.


Earlier this year Sean sold his house to prevent it from going into foreclosure and everything in it so he could buy an RV for his wife and him to live in. His goal was to move them to Washington state in the Puget Sound so his wife Sarah could have relief from her symptoms. It worked! Sarah has been getting better every day so for Sarah’s sake and so he can keep the doctors he has been working with, he needs to stay in Washington.


Sean has started the process to get on disability but that can take up to a year or more and he is currently unable to work because his symptoms are so bad. He had been misdiagnosed for so long and changing medications to the right ones really takes it out of a person.

I want to alleviate his financial stress so he can concentrate on spending time with his wife and daughter, doing the things on his bucket list and fighting LBD so he can stay around as long as possible. Stress exacerbates his symptoms and will cut his already limited life shorter.


My goal is to meet the cost of a year of expenses for Sean and his family. Then after that, keep raising funds so Sean can cross a few things off his bucket list. Sean gave me a few that he would love to do before he is in such a shape that he will not be able to do them:

- Bring his daughter out to Washington to visit.  She is in College at CSU majoring in neuropsychology to help people like Sean.

[update: neuropsych doesn't have enough math! - she switched to applied/computational mathematics]

- Take a hot air balloon ride [update: balloon ride scheduled!]

- See Pearl Jam, Porcupine Tree, and Roger Waters concerts [update: we got to see Roger Waters!  Amazing!].

- Take his wife on the honeymoon they never had

- Visit CERN

- A ride on the 'ring

Please help in any way you can. Share this with friends and family and help spread information about Lewy Body Dementia. This dude has done so much for me; he is family and one of the few honest and altruistic people out there. I can think of no one who deserves a break as much as he does.

Help spread the word!

Thanks