This GoFundMe is in honor and support of Sean O’Donoghue.
My brother, Sean O’Donoghue, who is 21 years young, was born with 8 major heart defects. His first open-heart surgery was when he was 4 months old. His first Heart Transplant was at the age 4! He lives life to the fullest, is a great golfer, and an amazing person who inspires people. All who know him personally, know of him or are just hearing his name, know how great of a person he is, how kind his soul is and how passionate he is about living his life to the fullest. His many passions include watching (and betting on) football and everything about the Green Bay Packers.
Unfortunately, Sean went into heart failure, and rejection in January of 2015 during one of his high school’s Golf matches. Ever since then, our road has become more bumpy with lots of twists and turns. He needs a second heart transplant and has been on the UNOS list since May of 2015.
During the past couple years his team of amazing doctor’s have done what they could to keep him stable and home, but on September 21, 2018 Sean crashed. He was admitted to the Cardiac ICU at UCLA. He has been living there since then and will continue to live there until he receives that life-saving, donated heart. His new home away from “home”.
The past couple weeks Sean has declined even further. He has a lot of fluid around his lungs, abdomen, pericardial effusion, swelling and of course his heart is stiff. His own body has developed antibodies to fight his own heart. Because of that they now have him on Plasmapheresis treatments and chemotherapy among the already plethora of other medications, IV’s, drips, pills, etc.
He’s so very complicated and fragile. As his sister, it’s hard to watch. You think of a million things you wish you could do to help, but all you can really do is be there for him, encourage him, lift his spirits up and bring him his favorite little person, his Jack Jack.
His team of doctors spend countless hours of discussion, research and honest conversation about the best options for the outcome we need. Our Prayers are for a Miracle. We are praying that these treatments work to remove the antibodies, all of these destructive soldiers fighting a war inside Sean that they will NOT win.
His journey is my journey. His journey is my family’s journey! His journey is friends, and his Team of Doctor’s journey too.
As Sean continues on this journey to receive his Perfect Heart from his future donor we thank you all for your continued prayers! We need them now more than ever!