- L
- L
- L
Mike Scher's Story
Our father Michael Scher was diagnosed with ALS on February 18, 2019 at the age of 55. This page was set up by Michael's son Joshua to help support Mike during his ALS battle as he approaches year three of this harrowing journey. Those of you who have known Mike understand the type of person he has been all his life, and we ask that you please donate and/or share this page to not only help Mike continue to fight, but also raise awareness about ALS. UPDATES BELOW
Update Posted by Family 1-9-2022:
Hello everyone,
It is with deep sadness that we lost our beloved husband and father Mike Scher on the morning of January 7, 2022 after a three-year battle with ALS. Mike fought courageously and inspired many along this difficult journey, with his spirit undeterred. All of us along with Mike would like to express our gratitude to everyone who followed Mike’s journey and helped to support his fight with ALS via the Scher Strong team. Mike would reiterate numerous times how blessed he was to have so many who deeply cared about him. We would also like to say thank you to everyone who reached out to us. We really appreciate all the love, thoughts and prayers during this difficult time. We would like to invite everyone to Mike’s funeral service. It will be held graveside on Wednesday, January 12 at 1:00 p.m. at Gan Shalom with Shiva at the house of Mike and Shari to follow on Wednesday, Thursday and Friday (more information to come on the Shiva). Regarding the cost of the funeral, we ask if anyone would be willing to donate as the expenses that entail his services and burial provide an immense challenge due to the financial constraints that his disease brought about. Thank you all again for being such a blessing to Mike. Love you all and thank you for being #ScherStrong!
Update Posted by Mike 11-28-2021:
Hi everyone,
I am writing this update with my eyes on my Tobii Dynavox speech device. I hope that everyone had a great Thanskgiving! Here is the latest regarding an interview done with me, my wife Shari, my son Matt and my best friend from college, former Miami Dolphin John Offerdahl. The interview was done by my cousin Bryan Feldman on his radio show in Las Vegas called Outta Line. We discussed my battle with ALS, my friendship of almost 40 years with John and to bring awareness to this terrible disease I and so many others have been afflicted with. Please take the time to listen to the interview on the URL below. This disease has taken a physical, mental and financial toll on our family. Please consider a DONATION and/or at least SHARE this post. Again, I appreciate all of the thoughts and prayers I've received during these past few years, it means a lot to me and my family and I have been so blessed to have you all be in my life. Thank you and Love to you all! #SCHERSTRONG
Radio Interview link: https://www.youtube.com/watch?v=lotYMrZsTtk (Interview starts at 25:44)
Update Posted by Mike 9-26-2021:
Update (please take time to read): First, I want thank everyone for their thoughts and prayers. I appreciate each and every message. I am able to now respond using either Facebook messenger or email using my communication device. This is a terrible disease where my mind is sharp, but I have lost the ability to walk and move. My voice is down to a whisper. I have lost nearly hundred pounds. My amazing wife, Shari, is doing a great job trying to fatten me up. Nearly all my food goes through my feeding tube, but the other day we got Chipotle for dinner and Shari pureed it in the blender and I got to enjoy it and put some calories on at the same time. The main reason for my update is regarding my care. My wife just got her hip replacement in June and is still recuperating from effects of that surgery. However, she also has been diagnosed with polymyalgia rheumatica which is a debilitating inflammatory arthritis. For these reasons, Shari has a difficult time participating in my care. Now we are in need of additional nursing care for me. Additionally, my medications, supplies and equipment are expensive. ALS is an expensive disease, we would appreciate any donation. Also, please hit the share button to share this post. Thank you and stay #ScherStrong!
May 29, 2021 from Mike Scher:
Hello all, I am typing this message with my eyes (Please take the time to read):
May is ALS Awareness Month and to take a line from Lou Gehrig’s speech, “Today, I consider myself the luckiest man on the face of the earth.” The reason I say that is I have the love and support of my amazing wife, Shari. Since my diagnosis, she has endured more physical and emotional pain than any person should have to experience. She has watched me lose the ability to walk, eat full meals, move and have regular conversations as my voice fades. Yet every day, she takes care of all of my needs and is slowly burning out. My heart is literally broken watching what Shari goes through to care for me and now with her body physically worn down, she is in desperate need of a hip replacement. The doctor told Shari she can no longer put off the surgery, and it’s now scheduled for June 9th. Following the surgery, she will not be able to participate in my care for approximately two months. Since I require 24/7 care, I am needing additional nurse aide hours on a daily basis. We are struggling to acquire the personnel and funds needed to keep me going, the reasoning for this post as I have not been able to get this help. We have even contemplated hospice, although that would entail me giving up many of the necessities that help me fight this disease. I continue to appreciate all the thoughts and prayers and intend on keeping the faith, although it’s becoming harder to do so without help. Please consider DONATING & SHARING this post. Love to you all! #ScherStrong
February 26, 2021 by Scher Family:
♥️UPDATE 2-26-21♥️
Hi everyone, I just wanted to give you an update of what is new with Mike. We had a small hospital stay due to Grave’s disease. He no longer has a thyroid and he was being over medicated with his levothyroxine. The dosing is in accordance with your weight. If you get too much, it starts a vicious cycle of rapid heart rate which also speeds up the metabolism and causes further weight loss. It was caught and is being regulated and he is back to himself!
Now for the really good news. Since starting the AMX0035 on January 22nd, we have seen improvement! He has since up his dose to twice a day. We say a prayer every time I administer it. The things we have seen in this last week alone are improved appetite, weight gain, increased lung volume, skin and eye clarity, fasciculations of the waking up of muscles, and movement in right hand and arm. The movement started as a slight finger move. He can now move his fingers to lifting his hand with radiated movement up his arm. We know this is going to be a long journey but we are so excited by the results so far!
As time goes on, the expenses related to the disease continue to increase. The rates for certified caregivers continues to climb. The needed feeding pump, supplies, and formula not covered by his insurance which is over $500 a month. Also the cost of the AMX0035 which is $850 a month. Additionally the increase of prices in the everyday things Mike needs for his care. We appreciate all the support, thoughts and prayers! Please donate if you can, every dollar helps. Please share this! Mike is fighting this beast and intends to win!
We love you! God Bless ♥️
Mike, Shari, Matt, and Josh
#SCHERSTRONG
#BeatALS
#MIKEFTW
February 7, 2021 by Shari Scher:
♥️UPDATE FEBRUARY 7♥️
Every time Mike takes his new medication, we each say a silent prayer. This coming Friday will be three weeks of Mike being on the AMX0035. That day he will begin the regimen of a twice a day dose. Since Mike started this medication, I can see a difference in his all around being. His coloring is better, his eyes are brighter and most of all his muscles are firing. His PT even said he felt stronger on Friday . Now for a little more exciting news. The past year, Mike has been basically paralyzed from the neck down. Starting last week Mike has been able to slightly move his right fingers and hand. Not much movement, but it’s definitely movement. This along with the firing up of the muscles gives us so much hope. This all happened in the first two weeks! Looking forward to the two times a day dose and working to feel his arms around me giving me a hug! ♥️
January 18, 2021 by Scher Family:
Hello everyone,
It is hard to believe that on February 18th, it will be two years since we heard the life changing words, “Mike I’m sorry to tell you, you have ALS.” I prefer to think ALS stands for Always Love Strong, because loving Mike with all we have is what makes us strong to fight this battle, instead of the latter, Amyotrophic Lateral Sclerosis. The progression of this disease is getting worse and up until recently there has been no drugs to fight or cure the disease. Last year there was a new hope discovered. On January 8th, Mike had his quarterly visit with the ALS clinic. One of the takeaways from the appointment is some potentially exciting news. There has been a clinical trial of a new drug that has shown promising effects in slowing and/or stopping the progression of the disease. Even in some cases, a reversal of the effects of this disease. This drug is entering its phase three trial. With the Right To Try Law in effect, Mike was told he can use this new drug while they are still in trial with the third round of studies! Great news our miracle is almost here. Although this is encouraging regarding the drug, the cost associated with the right to try this drug is $850 per month for Mike. Given the fact that there are so many other expenses, between caregivers, medical equipment, other medications and medical supplies, the cost of this medication creates a greater financial burden. However, the potential benefits of this medication could be the miracle we are looking for.
Additionally, on Christmas day, Shari broke her wrist. She required surgery implanting two plates, which will require physical therapy and 6-12 months of healing time. With Shari’s injury and the progression of Mike’s ALS, It is imperative that Mike receives more help from caregivers.
Thank you all for your continued prayers, love and support. PLEASE CONTINUE TO DONATE TO AND SHARE OUR GOFUNDME PAGE! We are #SCHERSTRONG for Mike Scher.
July 17, 2020 by Scher Family:
Hello everyone, I hope this update finds you well. Attached below is a video from Mike, as he has received his Tobii Dynavox device. A huge thank you in part to the Gleason Foundation. They are currently working towards helping us get the eye-drive, which will enable Mike to drive his chair with his eyes. He has been unable to do so for about a year now, relying on others to do so. As Mike mentions in the video, this disease has put a huge financial burden on our family. The following are our approximate costs associated with ALS from a monthly breakdown:
$2250/Month for Morning Caregivers
$2250/Month for Night Caregivers (As this terrible illness progresses, we will need to add more hours to both his morning and nightly caregivers)
$1250/Month for Medical Equipment (Trilogy, Cough Assist, Suction Machine, etc.)
$900/Month for Prescribed Medicine
$1000/Month for Medical Supplies (Catheter Supplies, Gloves, Wipes, Alcohol, Over the Counter Medicine, etc.)
Since our last update, Mike’s Forced Vital Capacity has dropped down from 49% to 30% over a 6 month period. His next ALS Clinic appointment is September 4th. Due to COVID-19, his last few ALS Clinic appointments have been done virtually through Microsoft Teams. Mike has also required a surgery for the replacement of his feeding tube, due to it falling out twice. Mike’s voice has weakened, which has kept his talking limited. The new Tobii device will allow Mike to communicate his needs to family members, as well as caregivers.
Thank you all for your continued support! It has been a difficult journey, but having a solid support group around us has made it so much easier. Please keep Mike in your thoughts and prayers! Thank you everyone for being #SCHERSTRONG!
November 9, 2019 by Scher Family:
❤️Update November 9, 2019❤️
Update on Mike
#SCHERSTRONG
It has been just under 1 year since Mike’s initial hospital stay and diagnosis. It’s amazing how quickly this disease moves. We were so thankful to have made our trip to Michigan. It was a rough trip for Mike, but thankfully we could make it up there one last time and see so many friends and family. It as an amazing trip.
Mike’s disease is progressing. After returning home, it has become harder and more difficult for Mike to drive his power wheelchair. New equipment has been ordered and we are looking forward to Mike commanding his chair again, and getting out to enjoy life.
Breathing has becoming an issue as Mike’s diaphragm is getting tighter. After another hospital stay, Mike now uses a mask with his ventilator at night. It helps by letting Mike’s diaphragm rest and the machine does the work of breathing for him.
We have scheduled Mike’s feeding tube surgery for December 18th. He is still eating food but the doctor recommended the tube for when he can no longer eat and to keep him comfortable and hydrated.
Mike is requiring more and more home care, and unfortunately no insurance covers home caregivers. We are thankful Matt is home for the next two months to help, but it is a lot of work for 2 people as it is a 24 hour job and Mike cannot be left alone. With this, the cost of many medical supplies, medication, and medical bills continue to grow.
Please continue to donate and share this GO FUND ME page and continue to keep Mike in your prayers!!! ❤️
Thank you!
Shari~❤️❤️❤️
May 2, 2019 by Scher Family:
❤️Update 5-2-19❤️
Mike has officially started the research trial. This drug is supposed to improve his diaphragm and lung contractability. We finished the first two weeks of the trial and went in for his evaluation, all looked good and they upped his dose to morning and evening. Today was the first day I had concern for Mike as the trial drug has a lot of heart related side effects, and Mike’s heart has been racing all day. We are watching him and will call the research clinic tomorrow morning.
Slowly I am watching Mike decline and get weaker. Respiratory came this past Tuesday and set Mike up with his cough assist machine and his trilogy respirator. They would like him to use the Trilogy at night while sleeping to let his diaphragm rest during the night. Right now Mike’s forced vital capacity is at 52% which he is only using half his lung capacity. Any point his lung capacity drops below 50%, the doctors will consider inserting a feeding, peg, tube into his stomach. He doesn’t need it yet, as he is still able to eat and swallow on his own, but they do this while Mike is still strong enough to go through the surgery/procedure.
We are planning a trip up to Michigan sometime in June with the van. Planning on Mike, me, Josh and his girlfriend Natalia. We will take it slow with lots of stops. We will be loaded with all of Mike’s equipment and will be making memories. Mike’s wish is to get back to Michigan to see Matt at Comerica Park doing what he loves best, being a part of The Detroit Tigers and working his broadcast internship. I love that Mike is able to watch Matt’s dream come true.
Please say a prayer for Mike. We still pray for a cure! ALS is not a rare disease and I still have a hard time understanding why we don’t know more about the causes, no way of really slowing it down, or curing this disease.
Thank you for all those who have donated. Please share Mike’s GO FUND ME PAGE. All the medical equipment, things he uses on a daily basis, and doctor costs are not completely covered by insurance or not covered at all. We are trying to keep Mike as comfortable and positive as possible.
Thank you for your continued love and support! ❤️
Shari-
#MIKESTRONG #SCHERSTRONG
April 15, 2019 by Scher Family:
❤️ Update ❤️ 4-15-19
Today Mike started his clinical trial. It is in phase 3 for a drug that would improve his diaphragm. The thing with clinical trials, it’s not guaranteed you get the drug. There is always the chance you get the placebo. I pray Mike gets the “real drug” and it helps. The disease is still progressing, as Mike feels he is getting weaker. At the doctors today they weighed him and he was down another four pounds. He is having a harder time moving his arms and his shoulders are causing him excruciating pain. We have good days and we have bad days. It’s a disease that has robbed Mike and I of our “empty nest” years. So glad we have the van to get Mike to and from his appointments, wishing he had more energy to go out and enjoy the days. One day at a time, we will get there. My goal is to get him to the beach!
Matt left for Michigan a week ago to start his internship for the 2019 Detroit Tigers Broadcast Intern. We are so very proud of him. With Matt being gone, it is now me caring for Mike. We have been fortunate enough to hire an aide for 2 hours in the am to bathe, dress, and get Mike into his power wheelchair and 2 hours at bedtime to get him ready and into bed. I can lift and transfer him during the day, but only a minimal amount of times.
As Mike disease progresses, newer equipment is needed, cost of medical supplies are going up, doctor appointments and medication are running the bills up. We are waiting for Respiratory to call and delivery his trilogy for nights, and waiting on physical and occupational therapist to evaluate him and start passive type therapy.
❤️We are asking that you please still share Mike’s Go Fund Me Page.❤️
#MikeStrong #ScherStrong #ALSSucks
March 27, 2019 by Scher Family:
Josh surprised Mike with a tattoo of Mike’s heartbeat from recent ekg. Looks phenomenal. A heart feels a heart! The bond my boys have with their dad is incredible and no disease will ever take that away from them! Love ❤️❤️❤️
March 16, 2019 by Scher Family:
Update ❤️ 3-16-19
Made it home from first day at ALS clinic. Absolutely exhausting and finding out no more physical therapy/occupational therapy. Really don’t want him walking, they want him conserve all his energy for things he needs to do. Especially conserving his energy for his diaphragm to help him breathe. Respiratory will be coming to the house to set up Mike with an at night respirator ( a trilogy). Not sure how it will work, but time will tell. Now comes the large expenses. Home health is not covered by insurance and is all out of pocket cost. This means no breaks for Matt or me during our 24/7 care for Mike. We need to have outside help and looking to raise money so Michael can have the care he needs as well as some breaks or sleep time for Matt and I. Please continue to share and donate to our go fund me page. God Bless! ❤️
March 6, 2019 by Scher Family:
Update❤️ 3-6-19
I learned something very sad today. I talked with the ALS Association and was told it doesn’t matter what type of insurance you have, soon Mike will have Medicare, home care is paid for all out of pocket. The only time they will pay for home care will be for therapy or if he needed skilled nursing for something like wound care. I will not be able to return to work because I am his primary caregiver with help from my 22 year old son Matt, who left school temporarily to help. Needing Matt was only temporary and I will need to hire someone to help me, I am not strong enough to care for him myself, and being awake 24 hours with no break is an option I can’t continue to do. This disease is horrible, it robs you of your ability to care for yourself or be independent. So not only does this disease take away your loved one in a horrific way, it leaves you in financial devastation during and after. I don’t know how people do it, unless they have a large family where family members can take shifts, something we do not have. Please continue to share. The cost of Mike’s medical equipment has not been covered by insurance and the larger items have not been available in the ALS loan closet.
Please share our GoFundMe page! Thank you everyone for your support!
#MikeStrong #ScherStrong
#ALSSucks #FightingALS
February 26, 2019 by Scher Family:
Update ❤️❤️
2-26-19
We are still trying to comprehend the diagnosis of ALS and what it means for today, tomorrow, and the future. With the disease, comes a lot of spasticity and fasciculations, which are incredibly painful and never seem to stop. Trying to find the right medications is tough, but we are on the right track. Mike continues to fight and be strong through all of this. Therapy is still twice a week and Mike pushes himself through all the aches, pains, and walls that stand before him. One day at a time.
With the advancement of the disease, he has outgrown many of his medical home supplies, and now needs more heavy duty, hospital quality equipment. Yesterday his hospital bed was delivered. Trying to make our front room a homey bedroom and comfortable. Room is large enough for his power wheelchair to sit right next to his bed, and when necessary the lift will fit also.
We are so overwhelmed by the support of friends, family, and the community our boys grew up in. We love our Lutz family! Please continue to share our page. Mike’s fight has just begun.
#MikeStrong
#ScherStrong
#FightALS
#F*ckALS
February 18, 2019 by Scher Family:
2-18-19 Update ❤️❤️
Many of you have read Michael's story below. Today Mike finally had his EMG. With many prayers and hopes, we did not get the outcome we had wished for. Michael has been diagnosed with ALS (Amyotrophic Lateral Sclerosis) also known as Lou Gehrig's disease of which there are no known cures. Trying to stay strong, Mike is a fighter. Right now he will be continuing with his physical/occupational therapy at Tampa General Hospital Outpatient Rehabilitation. He will be followed by the ALS Clinic at USF. Mike has a long battle ahead of him and with this diagnosis, the medical bills have started mounting, more home equipment and home healthcare are needed. We are still saving for the Conversion Van as this is now a necessity to get Mike to and from therapy, doctor appointments, and to get out and enjoy time with friends and family.
We thank everyone for their prayers and donations. Please continue to share. Mike's fight has just begun.
#MikeStrong
#FightALS
❤️
MICHAEL SCHER'S STORY
As many of you may know, our father Michael Scher has been battling some serious medical issues. In August 2017, Mike had a laminectomy with fusion to decompress the nerves in his spine. Although he had improvement initially, in April 2018, he began to experience a rapid deterioration and atrophy of the muscles throughout his body. What started as walking with a cane, went to a walker, and now uses a power wheelchair.
On December 14, 2018, Mike was admitted to Tampa General Hospital. On December 20th, he was moved into the In-Patient Rehab for Spinal Cord Injuries. Numerous tests have been done and there are still more being performed. Upon his release, January 17th, he will be followed up by USF Neurology Group as they are still searching for a diagnosis. We have been told that my dad has a neuromuscular disease but do not have a definitive diagnosis of which of these it is. An EMG will be performed in February to find a definitive answer and hopefully begin a treatment to hold off the disease. He will continue his physical and occupational therapy 3 times a week at Tampa General Hospital Outpatient Rehab.
When Mike and my mother Shari sat down with the case worker regarding their plans on bringing Michael home, they came to the conclusion that Michael needs 24 hour care and could not be left alone. My mom, Shari being his primary care giver, could no longer lift, move, or care for him on her own. The choices were find 24 hour care for Mike or have him go into a nursing home. Shari couldn’t bring herself to put him in a home; my brother Matthew, age 21, was asked to take a break from college and care for our father. A selfless sacrifice that no child should have to make, but provided what could be described as the ultimate gift, providing help to care for his father.
Unfortunately, throughout this process, Michael was in between jobs due to his company being acquired and him looking for his next opportunity. Therefore, he did not have insurance. He is currently on Medicaid which fights paying for care.
Mike, has always been a giver. He has always been the devoted husband, father, and always made sure he was there for others when help was needed. He always loved being at the baseball field watching my brother and I play ball, and being around friends and the community.
Now Mike and our family are in need. He will be in an electric wheelchair that cannot be carried on the back of a car on a lift. We were told that we need a Conversion Van to transport Mike and his wheelchair. An expense too great right now along with the other medical expenses and equipment he will be needing for his care. We are asking for donations to cover the cost of buying a used conversion van, accessibility features needed to the house to assist with his challenges, and the medical expenses facing Michael and our family.
Our father Michael Scher was diagnosed with ALS on February 18, 2019 at the age of 55. This page was set up by Michael's son Joshua to help support Mike during his ALS battle as he approaches year three of this harrowing journey. Those of you who have known Mike understand the type of person he has been all his life, and we ask that you please donate and/or share this page to not only help Mike continue to fight, but also raise awareness about ALS. UPDATES BELOW
Update Posted by Family 1-9-2022:
Hello everyone,
It is with deep sadness that we lost our beloved husband and father Mike Scher on the morning of January 7, 2022 after a three-year battle with ALS. Mike fought courageously and inspired many along this difficult journey, with his spirit undeterred. All of us along with Mike would like to express our gratitude to everyone who followed Mike’s journey and helped to support his fight with ALS via the Scher Strong team. Mike would reiterate numerous times how blessed he was to have so many who deeply cared about him. We would also like to say thank you to everyone who reached out to us. We really appreciate all the love, thoughts and prayers during this difficult time. We would like to invite everyone to Mike’s funeral service. It will be held graveside on Wednesday, January 12 at 1:00 p.m. at Gan Shalom with Shiva at the house of Mike and Shari to follow on Wednesday, Thursday and Friday (more information to come on the Shiva). Regarding the cost of the funeral, we ask if anyone would be willing to donate as the expenses that entail his services and burial provide an immense challenge due to the financial constraints that his disease brought about. Thank you all again for being such a blessing to Mike. Love you all and thank you for being #ScherStrong!
Update Posted by Mike 11-28-2021:
Hi everyone,
I am writing this update with my eyes on my Tobii Dynavox speech device. I hope that everyone had a great Thanskgiving! Here is the latest regarding an interview done with me, my wife Shari, my son Matt and my best friend from college, former Miami Dolphin John Offerdahl. The interview was done by my cousin Bryan Feldman on his radio show in Las Vegas called Outta Line. We discussed my battle with ALS, my friendship of almost 40 years with John and to bring awareness to this terrible disease I and so many others have been afflicted with. Please take the time to listen to the interview on the URL below. This disease has taken a physical, mental and financial toll on our family. Please consider a DONATION and/or at least SHARE this post. Again, I appreciate all of the thoughts and prayers I've received during these past few years, it means a lot to me and my family and I have been so blessed to have you all be in my life. Thank you and Love to you all! #SCHERSTRONG
Radio Interview link: https://www.youtube.com/watch?v=lotYMrZsTtk (Interview starts at 25:44)
Update Posted by Mike 9-26-2021:
Update (please take time to read): First, I want thank everyone for their thoughts and prayers. I appreciate each and every message. I am able to now respond using either Facebook messenger or email using my communication device. This is a terrible disease where my mind is sharp, but I have lost the ability to walk and move. My voice is down to a whisper. I have lost nearly hundred pounds. My amazing wife, Shari, is doing a great job trying to fatten me up. Nearly all my food goes through my feeding tube, but the other day we got Chipotle for dinner and Shari pureed it in the blender and I got to enjoy it and put some calories on at the same time. The main reason for my update is regarding my care. My wife just got her hip replacement in June and is still recuperating from effects of that surgery. However, she also has been diagnosed with polymyalgia rheumatica which is a debilitating inflammatory arthritis. For these reasons, Shari has a difficult time participating in my care. Now we are in need of additional nursing care for me. Additionally, my medications, supplies and equipment are expensive. ALS is an expensive disease, we would appreciate any donation. Also, please hit the share button to share this post. Thank you and stay #ScherStrong!
May 29, 2021 from Mike Scher:
Hello all, I am typing this message with my eyes (Please take the time to read):
May is ALS Awareness Month and to take a line from Lou Gehrig’s speech, “Today, I consider myself the luckiest man on the face of the earth.” The reason I say that is I have the love and support of my amazing wife, Shari. Since my diagnosis, she has endured more physical and emotional pain than any person should have to experience. She has watched me lose the ability to walk, eat full meals, move and have regular conversations as my voice fades. Yet every day, she takes care of all of my needs and is slowly burning out. My heart is literally broken watching what Shari goes through to care for me and now with her body physically worn down, she is in desperate need of a hip replacement. The doctor told Shari she can no longer put off the surgery, and it’s now scheduled for June 9th. Following the surgery, she will not be able to participate in my care for approximately two months. Since I require 24/7 care, I am needing additional nurse aide hours on a daily basis. We are struggling to acquire the personnel and funds needed to keep me going, the reasoning for this post as I have not been able to get this help. We have even contemplated hospice, although that would entail me giving up many of the necessities that help me fight this disease. I continue to appreciate all the thoughts and prayers and intend on keeping the faith, although it’s becoming harder to do so without help. Please consider DONATING & SHARING this post. Love to you all! #ScherStrong
February 26, 2021 by Scher Family:
♥️UPDATE 2-26-21♥️
Hi everyone, I just wanted to give you an update of what is new with Mike. We had a small hospital stay due to Grave’s disease. He no longer has a thyroid and he was being over medicated with his levothyroxine. The dosing is in accordance with your weight. If you get too much, it starts a vicious cycle of rapid heart rate which also speeds up the metabolism and causes further weight loss. It was caught and is being regulated and he is back to himself!
Now for the really good news. Since starting the AMX0035 on January 22nd, we have seen improvement! He has since up his dose to twice a day. We say a prayer every time I administer it. The things we have seen in this last week alone are improved appetite, weight gain, increased lung volume, skin and eye clarity, fasciculations of the waking up of muscles, and movement in right hand and arm. The movement started as a slight finger move. He can now move his fingers to lifting his hand with radiated movement up his arm. We know this is going to be a long journey but we are so excited by the results so far!
As time goes on, the expenses related to the disease continue to increase. The rates for certified caregivers continues to climb. The needed feeding pump, supplies, and formula not covered by his insurance which is over $500 a month. Also the cost of the AMX0035 which is $850 a month. Additionally the increase of prices in the everyday things Mike needs for his care. We appreciate all the support, thoughts and prayers! Please donate if you can, every dollar helps. Please share this! Mike is fighting this beast and intends to win!
We love you! God Bless ♥️
Mike, Shari, Matt, and Josh
#SCHERSTRONG
#BeatALS
#MIKEFTW
February 7, 2021 by Shari Scher:
♥️UPDATE FEBRUARY 7♥️
Every time Mike takes his new medication, we each say a silent prayer. This coming Friday will be three weeks of Mike being on the AMX0035. That day he will begin the regimen of a twice a day dose. Since Mike started this medication, I can see a difference in his all around being. His coloring is better, his eyes are brighter and most of all his muscles are firing. His PT even said he felt stronger on Friday . Now for a little more exciting news. The past year, Mike has been basically paralyzed from the neck down. Starting last week Mike has been able to slightly move his right fingers and hand. Not much movement, but it’s definitely movement. This along with the firing up of the muscles gives us so much hope. This all happened in the first two weeks! Looking forward to the two times a day dose and working to feel his arms around me giving me a hug! ♥️
January 18, 2021 by Scher Family:
Hello everyone,
It is hard to believe that on February 18th, it will be two years since we heard the life changing words, “Mike I’m sorry to tell you, you have ALS.” I prefer to think ALS stands for Always Love Strong, because loving Mike with all we have is what makes us strong to fight this battle, instead of the latter, Amyotrophic Lateral Sclerosis. The progression of this disease is getting worse and up until recently there has been no drugs to fight or cure the disease. Last year there was a new hope discovered. On January 8th, Mike had his quarterly visit with the ALS clinic. One of the takeaways from the appointment is some potentially exciting news. There has been a clinical trial of a new drug that has shown promising effects in slowing and/or stopping the progression of the disease. Even in some cases, a reversal of the effects of this disease. This drug is entering its phase three trial. With the Right To Try Law in effect, Mike was told he can use this new drug while they are still in trial with the third round of studies! Great news our miracle is almost here. Although this is encouraging regarding the drug, the cost associated with the right to try this drug is $850 per month for Mike. Given the fact that there are so many other expenses, between caregivers, medical equipment, other medications and medical supplies, the cost of this medication creates a greater financial burden. However, the potential benefits of this medication could be the miracle we are looking for.
Additionally, on Christmas day, Shari broke her wrist. She required surgery implanting two plates, which will require physical therapy and 6-12 months of healing time. With Shari’s injury and the progression of Mike’s ALS, It is imperative that Mike receives more help from caregivers.
Thank you all for your continued prayers, love and support. PLEASE CONTINUE TO DONATE TO AND SHARE OUR GOFUNDME PAGE! We are #SCHERSTRONG for Mike Scher.
July 17, 2020 by Scher Family:
Hello everyone, I hope this update finds you well. Attached below is a video from Mike, as he has received his Tobii Dynavox device. A huge thank you in part to the Gleason Foundation. They are currently working towards helping us get the eye-drive, which will enable Mike to drive his chair with his eyes. He has been unable to do so for about a year now, relying on others to do so. As Mike mentions in the video, this disease has put a huge financial burden on our family. The following are our approximate costs associated with ALS from a monthly breakdown:
$2250/Month for Morning Caregivers
$2250/Month for Night Caregivers (As this terrible illness progresses, we will need to add more hours to both his morning and nightly caregivers)
$1250/Month for Medical Equipment (Trilogy, Cough Assist, Suction Machine, etc.)
$900/Month for Prescribed Medicine
$1000/Month for Medical Supplies (Catheter Supplies, Gloves, Wipes, Alcohol, Over the Counter Medicine, etc.)
Since our last update, Mike’s Forced Vital Capacity has dropped down from 49% to 30% over a 6 month period. His next ALS Clinic appointment is September 4th. Due to COVID-19, his last few ALS Clinic appointments have been done virtually through Microsoft Teams. Mike has also required a surgery for the replacement of his feeding tube, due to it falling out twice. Mike’s voice has weakened, which has kept his talking limited. The new Tobii device will allow Mike to communicate his needs to family members, as well as caregivers.
Thank you all for your continued support! It has been a difficult journey, but having a solid support group around us has made it so much easier. Please keep Mike in your thoughts and prayers! Thank you everyone for being #SCHERSTRONG!
November 9, 2019 by Scher Family:
❤️Update November 9, 2019❤️
Update on Mike
#SCHERSTRONG
It has been just under 1 year since Mike’s initial hospital stay and diagnosis. It’s amazing how quickly this disease moves. We were so thankful to have made our trip to Michigan. It was a rough trip for Mike, but thankfully we could make it up there one last time and see so many friends and family. It as an amazing trip.
Mike’s disease is progressing. After returning home, it has become harder and more difficult for Mike to drive his power wheelchair. New equipment has been ordered and we are looking forward to Mike commanding his chair again, and getting out to enjoy life.
Breathing has becoming an issue as Mike’s diaphragm is getting tighter. After another hospital stay, Mike now uses a mask with his ventilator at night. It helps by letting Mike’s diaphragm rest and the machine does the work of breathing for him.
We have scheduled Mike’s feeding tube surgery for December 18th. He is still eating food but the doctor recommended the tube for when he can no longer eat and to keep him comfortable and hydrated.
Mike is requiring more and more home care, and unfortunately no insurance covers home caregivers. We are thankful Matt is home for the next two months to help, but it is a lot of work for 2 people as it is a 24 hour job and Mike cannot be left alone. With this, the cost of many medical supplies, medication, and medical bills continue to grow.
Please continue to donate and share this GO FUND ME page and continue to keep Mike in your prayers!!! ❤️
Thank you!
Shari~❤️❤️❤️
May 2, 2019 by Scher Family:
❤️Update 5-2-19❤️
Mike has officially started the research trial. This drug is supposed to improve his diaphragm and lung contractability. We finished the first two weeks of the trial and went in for his evaluation, all looked good and they upped his dose to morning and evening. Today was the first day I had concern for Mike as the trial drug has a lot of heart related side effects, and Mike’s heart has been racing all day. We are watching him and will call the research clinic tomorrow morning.
Slowly I am watching Mike decline and get weaker. Respiratory came this past Tuesday and set Mike up with his cough assist machine and his trilogy respirator. They would like him to use the Trilogy at night while sleeping to let his diaphragm rest during the night. Right now Mike’s forced vital capacity is at 52% which he is only using half his lung capacity. Any point his lung capacity drops below 50%, the doctors will consider inserting a feeding, peg, tube into his stomach. He doesn’t need it yet, as he is still able to eat and swallow on his own, but they do this while Mike is still strong enough to go through the surgery/procedure.
We are planning a trip up to Michigan sometime in June with the van. Planning on Mike, me, Josh and his girlfriend Natalia. We will take it slow with lots of stops. We will be loaded with all of Mike’s equipment and will be making memories. Mike’s wish is to get back to Michigan to see Matt at Comerica Park doing what he loves best, being a part of The Detroit Tigers and working his broadcast internship. I love that Mike is able to watch Matt’s dream come true.
Please say a prayer for Mike. We still pray for a cure! ALS is not a rare disease and I still have a hard time understanding why we don’t know more about the causes, no way of really slowing it down, or curing this disease.
Thank you for all those who have donated. Please share Mike’s GO FUND ME PAGE. All the medical equipment, things he uses on a daily basis, and doctor costs are not completely covered by insurance or not covered at all. We are trying to keep Mike as comfortable and positive as possible.
Thank you for your continued love and support! ❤️
Shari-
#MIKESTRONG #SCHERSTRONG
April 15, 2019 by Scher Family:
❤️ Update ❤️ 4-15-19
Today Mike started his clinical trial. It is in phase 3 for a drug that would improve his diaphragm. The thing with clinical trials, it’s not guaranteed you get the drug. There is always the chance you get the placebo. I pray Mike gets the “real drug” and it helps. The disease is still progressing, as Mike feels he is getting weaker. At the doctors today they weighed him and he was down another four pounds. He is having a harder time moving his arms and his shoulders are causing him excruciating pain. We have good days and we have bad days. It’s a disease that has robbed Mike and I of our “empty nest” years. So glad we have the van to get Mike to and from his appointments, wishing he had more energy to go out and enjoy the days. One day at a time, we will get there. My goal is to get him to the beach!
Matt left for Michigan a week ago to start his internship for the 2019 Detroit Tigers Broadcast Intern. We are so very proud of him. With Matt being gone, it is now me caring for Mike. We have been fortunate enough to hire an aide for 2 hours in the am to bathe, dress, and get Mike into his power wheelchair and 2 hours at bedtime to get him ready and into bed. I can lift and transfer him during the day, but only a minimal amount of times.
As Mike disease progresses, newer equipment is needed, cost of medical supplies are going up, doctor appointments and medication are running the bills up. We are waiting for Respiratory to call and delivery his trilogy for nights, and waiting on physical and occupational therapist to evaluate him and start passive type therapy.
❤️We are asking that you please still share Mike’s Go Fund Me Page.❤️
#MikeStrong #ScherStrong #ALSSucks
March 27, 2019 by Scher Family:
Josh surprised Mike with a tattoo of Mike’s heartbeat from recent ekg. Looks phenomenal. A heart feels a heart! The bond my boys have with their dad is incredible and no disease will ever take that away from them! Love ❤️❤️❤️
March 16, 2019 by Scher Family:
Update ❤️ 3-16-19
Made it home from first day at ALS clinic. Absolutely exhausting and finding out no more physical therapy/occupational therapy. Really don’t want him walking, they want him conserve all his energy for things he needs to do. Especially conserving his energy for his diaphragm to help him breathe. Respiratory will be coming to the house to set up Mike with an at night respirator ( a trilogy). Not sure how it will work, but time will tell. Now comes the large expenses. Home health is not covered by insurance and is all out of pocket cost. This means no breaks for Matt or me during our 24/7 care for Mike. We need to have outside help and looking to raise money so Michael can have the care he needs as well as some breaks or sleep time for Matt and I. Please continue to share and donate to our go fund me page. God Bless! ❤️
March 6, 2019 by Scher Family:
Update❤️ 3-6-19
I learned something very sad today. I talked with the ALS Association and was told it doesn’t matter what type of insurance you have, soon Mike will have Medicare, home care is paid for all out of pocket. The only time they will pay for home care will be for therapy or if he needed skilled nursing for something like wound care. I will not be able to return to work because I am his primary caregiver with help from my 22 year old son Matt, who left school temporarily to help. Needing Matt was only temporary and I will need to hire someone to help me, I am not strong enough to care for him myself, and being awake 24 hours with no break is an option I can’t continue to do. This disease is horrible, it robs you of your ability to care for yourself or be independent. So not only does this disease take away your loved one in a horrific way, it leaves you in financial devastation during and after. I don’t know how people do it, unless they have a large family where family members can take shifts, something we do not have. Please continue to share. The cost of Mike’s medical equipment has not been covered by insurance and the larger items have not been available in the ALS loan closet.
Please share our GoFundMe page! Thank you everyone for your support!
#MikeStrong #ScherStrong
#ALSSucks #FightingALS
February 26, 2019 by Scher Family:
Update ❤️❤️
2-26-19
We are still trying to comprehend the diagnosis of ALS and what it means for today, tomorrow, and the future. With the disease, comes a lot of spasticity and fasciculations, which are incredibly painful and never seem to stop. Trying to find the right medications is tough, but we are on the right track. Mike continues to fight and be strong through all of this. Therapy is still twice a week and Mike pushes himself through all the aches, pains, and walls that stand before him. One day at a time.
With the advancement of the disease, he has outgrown many of his medical home supplies, and now needs more heavy duty, hospital quality equipment. Yesterday his hospital bed was delivered. Trying to make our front room a homey bedroom and comfortable. Room is large enough for his power wheelchair to sit right next to his bed, and when necessary the lift will fit also.
We are so overwhelmed by the support of friends, family, and the community our boys grew up in. We love our Lutz family! Please continue to share our page. Mike’s fight has just begun.
#MikeStrong
#ScherStrong
#FightALS
#F*ckALS
February 18, 2019 by Scher Family:
2-18-19 Update ❤️❤️
Many of you have read Michael's story below. Today Mike finally had his EMG. With many prayers and hopes, we did not get the outcome we had wished for. Michael has been diagnosed with ALS (Amyotrophic Lateral Sclerosis) also known as Lou Gehrig's disease of which there are no known cures. Trying to stay strong, Mike is a fighter. Right now he will be continuing with his physical/occupational therapy at Tampa General Hospital Outpatient Rehabilitation. He will be followed by the ALS Clinic at USF. Mike has a long battle ahead of him and with this diagnosis, the medical bills have started mounting, more home equipment and home healthcare are needed. We are still saving for the Conversion Van as this is now a necessity to get Mike to and from therapy, doctor appointments, and to get out and enjoy time with friends and family.
We thank everyone for their prayers and donations. Please continue to share. Mike's fight has just begun.
#MikeStrong
#FightALS
❤️
MICHAEL SCHER'S STORY
As many of you may know, our father Michael Scher has been battling some serious medical issues. In August 2017, Mike had a laminectomy with fusion to decompress the nerves in his spine. Although he had improvement initially, in April 2018, he began to experience a rapid deterioration and atrophy of the muscles throughout his body. What started as walking with a cane, went to a walker, and now uses a power wheelchair.
On December 14, 2018, Mike was admitted to Tampa General Hospital. On December 20th, he was moved into the In-Patient Rehab for Spinal Cord Injuries. Numerous tests have been done and there are still more being performed. Upon his release, January 17th, he will be followed up by USF Neurology Group as they are still searching for a diagnosis. We have been told that my dad has a neuromuscular disease but do not have a definitive diagnosis of which of these it is. An EMG will be performed in February to find a definitive answer and hopefully begin a treatment to hold off the disease. He will continue his physical and occupational therapy 3 times a week at Tampa General Hospital Outpatient Rehab.
When Mike and my mother Shari sat down with the case worker regarding their plans on bringing Michael home, they came to the conclusion that Michael needs 24 hour care and could not be left alone. My mom, Shari being his primary care giver, could no longer lift, move, or care for him on her own. The choices were find 24 hour care for Mike or have him go into a nursing home. Shari couldn’t bring herself to put him in a home; my brother Matthew, age 21, was asked to take a break from college and care for our father. A selfless sacrifice that no child should have to make, but provided what could be described as the ultimate gift, providing help to care for his father.
Unfortunately, throughout this process, Michael was in between jobs due to his company being acquired and him looking for his next opportunity. Therefore, he did not have insurance. He is currently on Medicaid which fights paying for care.
Mike, has always been a giver. He has always been the devoted husband, father, and always made sure he was there for others when help was needed. He always loved being at the baseball field watching my brother and I play ball, and being around friends and the community.
Now Mike and our family are in need. He will be in an electric wheelchair that cannot be carried on the back of a car on a lift. We were told that we need a Conversion Van to transport Mike and his wheelchair. An expense too great right now along with the other medical expenses and equipment he will be needing for his care. We are asking for donations to cover the cost of buying a used conversion van, accessibility features needed to the house to assist with his challenges, and the medical expenses facing Michael and our family.