
Saving Gianna Marie
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Devic's Disease
My name is Gianna Marie Flores. I am 3 years old and have been diagnosed with Devic's Disease. Devics Disease is a very rare form of Multiple Sclerosis. It's an auto immune disease that attacks my central nerves in my spine and eyes. I am the youngest person in the world diagnosed with this disease. When I got a cold in June 2014, my own immune system attacked my optical nerve and spine causing me to be paralyzed from the waist down for 5 weeks. The doctors told me it was transverse myelitis. The antibody that diagnosis my disease is called Auquiporin 4. A high level of this is considered 6. My antibody level is 38. My disease is degenerative which means every nerve I lose is gone forever. This makes it likely that I will become blind or paralyzed sometime in my life. There is no cure. There are no pediatric specialist to see me in Arizona. Its been hard to find anyone. The youngest child before me was 7 yrs old when they were diagnosed. The more reoccurances I have the more likey it will be fatal. There is one doctor who can see me and he's at the Mayo Clinic in Minnesota. I live in Tucson, Arizona with my mom Caraleen Fawcett. My mom stopped working and stopped graduate school to in-home school me and keep me away from germs. I am raising money to pay for an out of state Dr. who knows about my Disease. Please help me raise 5000.00 so my mom can take me to see the Dr. at the Mayo Clinic. Our insurance is not going to pay so my mom is going to get me there. Thank you for taking the time to read my story. Thank you and God Bless
Lots of Love, Gianna Marie Flores
Organizer
Caraleen M. Fernandez
Organizer
Tucson, AZ