I have been crushing the time frames they have been giving me and I hope to continue to do so.
However things have become increasingly difficult in many ways for me and my son. The inevitability of me needing to be in an assisted living facility is coming up quickly. My arms and hands no longer work, my legs are catching up fast, not bad considering they had told me I would be in a chair by last April :)
The Next Step here soon will be the need of a feeding tube as my abilities to chew and swallow and even talk are becoming quite Limited.
At this point it is just a matter of trying to make the next few months comfortable for my son and I. Unfortunately the medication and treatments I need are not covered by any medical insurance. Any help from All You Beautiful supportive friends would be greatly appreciated.
Thank you all so much for being so supportive and giving me strength and love through all of this.