Dear friend,

 

Our friends are going through something unimaginable and I need your help. While we can't control the outcomes of this diagnosis, it's my goal to do everything we can for this family and help give their children the joy they deserve.

 

 

 

The Crowe family has four beautiful children; Bella, Jake, Saige and Satcher,  Their parents Paige and Jake noticed early on that something wasn't as it should be with Satcher. That first doctors visit was the beginning of a long, exhausting, and terrifying series of tests, questions, hospital visits, and late nights.

 

After nearly two years of unanswered questions, we found out that Satcher has been diagnosed with a progressive mitochondrial disorder.

 

Prognosis is not good. Life expectancy is gut wrenching with most children with infant onset returning to their heavenly home between their second and third birthday. Satcher is 27 months old.

 

 

 

 

They are also testing Saige to see if she has gone undiagnosed. We pray she is healthy.

 

As you can imagine, this is a parent's absolute worst nightmare.

 

Specifics on Satcher:

 

98% of his blood mitochondria has a genetic change. While this change causes a spectrum of disease ranging from NARP to Leigh’s syndrome. It is most likely he has the latter and more severe.

 

This disease comes with rapid and sudden decline. usually onset by a simple viral infection requiring their bodies to spend too much energy fighting illness and not enough for basic life functions ultimately resulting in respiratory failure.

 

Moving forward we have to check into the hospital at the first signs of illness (runny nose, cough, slight fever) and have to be extremely cautious around anyone with illness.

 

Satcher's family and friends are clinging to the fact he is still progressing and has tolerated illness well in the past.

 

 

 

 

They will travel to Children’s Hospital in Philadelphia to see the specialist there as soon as they can see them.

 

In the meantime Paige and Saige have to be tested. Our biggest prayer is that she doesn’t have it, too.

 

Please help us raise money for this precious family so that they can give Satcher the care and experiences he needs and deserves. While we can't control the outcome, we can control how we react to it.

 

I'm humbly asking for your help to play a role in helping this family heal.