Jose will beat Duchenne!
Donation protected
Jose was born on March 12th, 2001, he is currently 16 years old. At the age of 6, Jose was diagnosed with Duchenne Muscular Dystrophy.
As a younger boy, Jose would play, like any other child his age - he would run, jump, and practice Karate.
At the age of 9, the disease started affecting his legs, and he had to be placed in a wheel chair; that is when his father, abandoned him and his mother (Alejandra).
Despite lifes struggles, Jose has faced these difficulties with the best attitude and a constant smile.
The disease now has affected his arms, losing some mobility - which is very hard on him, because not only is he an excellent painter; but that is one of his dreams.
Jose attends school, every day; and was just awarded a Honorable Student Award, by Guatemala City's Mayor - Alvaro Arzu. Jose has to embark in swimming lessons on a daily basis, to strengthen his weak muscles; and on top of that, accompanies his mother to nightly University courses.
Joses biggest dream, besides becoming a painter, is to become a Pastor, to share the word of God, and to tell people that God loves everyone.
Last year, the EXON SKIPPING treament was approved, and it is extremely expensive!It averages $300K yearly.
http://www.raredr.com/news/duchenne-drug-to-cost-300k
This would help stop the diseases progression, extending Jose's life, and ability to reach his dreams!
WE NEED YOUR HELP - HIS MOTHER IS A SINGLE MOTHER - and THE DISEASE KILLS IN THE 20's.
FOLLOW JOSE AND BE INSPIRED:
https://www.facebook.com/Jose-123988034842484/
As a younger boy, Jose would play, like any other child his age - he would run, jump, and practice Karate.
At the age of 9, the disease started affecting his legs, and he had to be placed in a wheel chair; that is when his father, abandoned him and his mother (Alejandra).
Despite lifes struggles, Jose has faced these difficulties with the best attitude and a constant smile.
The disease now has affected his arms, losing some mobility - which is very hard on him, because not only is he an excellent painter; but that is one of his dreams.
Jose attends school, every day; and was just awarded a Honorable Student Award, by Guatemala City's Mayor - Alvaro Arzu. Jose has to embark in swimming lessons on a daily basis, to strengthen his weak muscles; and on top of that, accompanies his mother to nightly University courses.
Joses biggest dream, besides becoming a painter, is to become a Pastor, to share the word of God, and to tell people that God loves everyone.
Last year, the EXON SKIPPING treament was approved, and it is extremely expensive!It averages $300K yearly.
http://www.raredr.com/news/duchenne-drug-to-cost-300k
This would help stop the diseases progression, extending Jose's life, and ability to reach his dreams!
WE NEED YOUR HELP - HIS MOTHER IS A SINGLE MOTHER - and THE DISEASE KILLS IN THE 20's.
FOLLOW JOSE AND BE INSPIRED:
https://www.facebook.com/Jose-123988034842484/
Organizer
Giancarlo Vincenzo Puccini
Organizer
Aventura, FL
