Our son, Jayce Waddell, is slowly dying from a very rare version of the kidney disease Nephrotic Syndrome which doctor's can't find the source.
He's on 15 different medicines each day,
Jayce has constant diarrhea several times a day, he gets leg, arm, and neck cramps, and he has extreme swelling in his body and face. He's anemic and get's worn out quickly.
Doctors tried the normal steroid and cyclosporine treatment. They did a kidney biopsy and extensive genetic testing. We then found out he had steroid resistant nephrotic syndrome with a TRPC6 Gene mutation. There was nothing they could do but watch him go through this exhausting disease
In October of 2018, we started going to Cincinnati Children's hospital (#2 for kidneys in the US). They found that he also has extremely high cholesterol and hypothyroid, his LDL has reached as high as 1000 and should be under 150!
He has a kidney team of 12 doctors, G.I. doctor cardiologists, endocrinologist, and genetic doctor. His case is very rare and none of our doctors know what to expect or do.
We are quickly going through our available funds to tackle these mounting bills but our reservoir will not last long.
Please donate what you can today to help build enough funds to be able to deliver any treatment or procedure that our little warrior will inevitably needs.