Save Tallulah Moon #ColdplayTourForTheCure #Moon Music

As a Mama of four, and friend of the Whitrods, I feel deeply connected to the journey of Tallulah Moon who lives with a rare neurodegenerative disease SPG56. I’ve seen firsthand the challenges they face, and it breaks my heart knowing what her parents are going through to secure a future for their precious daughter.

What stands between Tallulah and a clnical trial that could stop this disease in its tracks- is money. The parents and their foundation have come so far already. They need help to get to the finish line.

In light of Coldplay’s upcoming tour promoting their new album “Moon Music,” we have a unique opportunity to shine a light on Tallulah’s story. Just as Chris Martin sings, “In a sky full of stars, I think I saw you,” let’s come together as a community to create a constellation of hope for families battling rare genetic diseases.

I’m raising money for Genetic Cures for Kids Inc.-the foundation started to make this moonshot cure a reality.

Every donation will help illuminate the path for children like Tallulah. This organisation accelerates the discovery and development of effective treatments for kids living with rare genetic diseases. Founded by Chris and Golden Whitrod, whose little Tallulah lives with the rare neurodegenerative disease SPG56, their mission—'Our Moon's Mission'—is to cure SPG56.

This campaign not only gives hope to families affected by SPG56 but also builds a framework that could treat over 7,000 other rare diseases. As we strive to make a difference, let’s remember Coldplay’s sentiment: “When you try your best but you don’t succeed.” Together, we can succeed in bringing light and healing to those in need.

Thank you for your contribution to this cause that resonates so deeply with me. I hope to see some of you in Melbourne, united under the stars for Tallulah Moon.

Golden Whitrod

Co-founder, Genetic Cures for Kids Inc.

www.ourmoonsmission.org

Funding research today to give children affected by SPG56 a better tomorrow