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Save Maxim Malyshev SMA type 1

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Hi All,

 

I am Jackie and I have set up this fundraiser for Maxim Malyshev, a little boy, who was born healthy on 3/3/2020 and at three months old was diagnosed with a terminal decease called SMA Spinal Muscular Atrophy type 1. It is a rare genetic disorder; left untreated this disease slowly leads to paralysis and respiratory arrest.  Luckily, there is a cure - a drug called Zolgensma, which can replace the wrong gene. Unfortunately, it is the most expensive drug in the world, which costs $2.3 million and it has to be injected before child turns two. An ordinary single mother fighting alone for her son cannot afford this life saving medicine. She has set up multiple social media accounts to help spread the word and raise funds, but the fundraising is going extremely slow! This decease does not wait. Maxim fades away every day, yet there is a chance to save his life.

 

Please consider donating and spread the word!! A little kindness goes a long way. Together, we can save baby Maxim. Thank you from the bottom of my heart.

Here are official social media pages for Maxim

https://instagram.com/maximsma1eng?utm_medium=copy_link

https://instagram.com/maximmalyshev_sma1?utm_medium=copy_link


https://www.facebook.com/profile.php?id=100066335890379

 

Donations 

    Organizer

    Jackie Bohdan
    Organizer
    Stowe Township, PA

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