Save Baby Boshko
Donation protected
Thank you for your interest in our campaign. My name is Jelena Stankovic, I live in Fort Lauderdale, Florida and I am helping raise money for my dear childhood friend's son Boshko, who was born with Spinal Muscular Atrophy type 1.
SMA1 is a neuromuscular disease that causes progressive muscle wasting. Untreated, the disease causes reduced muscle activity, trouble swallowing, and eventual death in many cases.
There is no outright cure for the condition, but a highly effective treatment called Zolgensma was recently developed. Unfortunately, it’s among the most expensive medical treatments in the world, valued at $2.125 million.
The money we raise will go to Boshko’s family to help cover medical and travel expenses so he can receive this life-saving treatment. He will receive treatment in Budapest, Hungary, which is their closest treatment center. The fundraiser's beneficiary will be Boshko's father, Janko Gugleta.
Boshko was born in Serbia, a small country in the Balkans where Zolgensma is currently not approved as a treatment for SMA1.
Zolgensma is most effective when it’s administered as early as possible so we’re in a race against time and your generosity is fueling the car.
Important note: The money we raise through this GoFundMe will contribute to the main fundraising campaign in Boshko’s home country. Please, follow our progress here .
WHAT YOU CAN DO
1. Support us financially if you are able. We realize times are tough for everyone and we only ask for your support if you are in a position to give it.
2. Spread the word. Perhaps even more important than your direct support is that you help us get this GoFundMe in front of as many people as possible. Share it on your social media accounts and let everyone you know how they can contribute.
WHO THIS IS FOR
This is about a brave baby boy fated to fight for his life since birth and about a family who will do anything to help him win that fight.
Boshko Gugleta was born on January 14, 2021.
Medical examinations all showed he was a perfectly healthy baby. For the first three months of his life, everything seemed fine.
At around that time, his mother, Nadja, realized he was much less active than Boshko’s brother was at the same age. To be on the safe side, she brought up the issue with her physician.
Genetic testing then revealed the terrible truth that Boshko had SMA1.
The following month was a whirlwind of doctor’s appointments. Boshko’s family rushed to arrange treatment for him with Spinraza, a less effective treatment that only staves off the worst effects of the disease.
Spinraza is, luckily, approved in Serbia and administered through the country’s managed care system.
After a rough few weeks, Boshko received the Spinraza, effectively buying time until we manage to fund further treatment.
WHY THIS IS SO IMPORTANT
Spinal Muscular Atrophy is a relatively rare condition. But, despite affecting only around 1 in 10,000 children worldwide, its consequences are devastating.
Please, read more about SMA and its effects at the website of the SMA Foundation .
In addition to helping Boshko, we hope to spread awareness about the disease.
Parents-to-be and their caregivers are the first line of defense against SMA. Information about a family’s history with SMA can give future parents the tools they need to avoid the same fate as Boshko’s family.
SMA is a hereditary condition.
A roll of the genetic dice shouldn’t stand between a child and their future, and with your help, it won’t.
We’d love for you to follow Boshko’s journey and help spread the word:
Facebook: https://www.facebook.com/daiboskopobedisma/
Instagram: https://www.instagram.com/daiboskopobedisma/
Twitter: https://twitter.com/1032na3030
SMA1 is a neuromuscular disease that causes progressive muscle wasting. Untreated, the disease causes reduced muscle activity, trouble swallowing, and eventual death in many cases.
There is no outright cure for the condition, but a highly effective treatment called Zolgensma was recently developed. Unfortunately, it’s among the most expensive medical treatments in the world, valued at $2.125 million.
The money we raise will go to Boshko’s family to help cover medical and travel expenses so he can receive this life-saving treatment. He will receive treatment in Budapest, Hungary, which is their closest treatment center. The fundraiser's beneficiary will be Boshko's father, Janko Gugleta.
Boshko was born in Serbia, a small country in the Balkans where Zolgensma is currently not approved as a treatment for SMA1.
Zolgensma is most effective when it’s administered as early as possible so we’re in a race against time and your generosity is fueling the car.
Important note: The money we raise through this GoFundMe will contribute to the main fundraising campaign in Boshko’s home country. Please, follow our progress here .
WHAT YOU CAN DO
1. Support us financially if you are able. We realize times are tough for everyone and we only ask for your support if you are in a position to give it.
2. Spread the word. Perhaps even more important than your direct support is that you help us get this GoFundMe in front of as many people as possible. Share it on your social media accounts and let everyone you know how they can contribute.
WHO THIS IS FOR
This is about a brave baby boy fated to fight for his life since birth and about a family who will do anything to help him win that fight.
Boshko Gugleta was born on January 14, 2021.
Medical examinations all showed he was a perfectly healthy baby. For the first three months of his life, everything seemed fine.
At around that time, his mother, Nadja, realized he was much less active than Boshko’s brother was at the same age. To be on the safe side, she brought up the issue with her physician.
Genetic testing then revealed the terrible truth that Boshko had SMA1.
The following month was a whirlwind of doctor’s appointments. Boshko’s family rushed to arrange treatment for him with Spinraza, a less effective treatment that only staves off the worst effects of the disease.
Spinraza is, luckily, approved in Serbia and administered through the country’s managed care system.
After a rough few weeks, Boshko received the Spinraza, effectively buying time until we manage to fund further treatment.
WHY THIS IS SO IMPORTANT
Spinal Muscular Atrophy is a relatively rare condition. But, despite affecting only around 1 in 10,000 children worldwide, its consequences are devastating.
Please, read more about SMA and its effects at the website of the SMA Foundation .
In addition to helping Boshko, we hope to spread awareness about the disease.
Parents-to-be and their caregivers are the first line of defense against SMA. Information about a family’s history with SMA can give future parents the tools they need to avoid the same fate as Boshko’s family.
SMA is a hereditary condition.
A roll of the genetic dice shouldn’t stand between a child and their future, and with your help, it won’t.
We’d love for you to follow Boshko’s journey and help spread the word:
Facebook: https://www.facebook.com/daiboskopobedisma/
Instagram: https://www.instagram.com/daiboskopobedisma/
Twitter: https://twitter.com/1032na3030
Organizer
Jelena Stankovic
Organizer
Fort Lauderdale, FL
