Savannahs hopes and dreams fund ❤️

My little baby girl has just been diagnosed with a horrible condition called lissencephaly, our world has been completely shaken as the prognosis for her isn't great. It's a potentially life limiting condition and means that she wont develop past the age of a 3-5 month old baby.  The money you've already kindly raised so far has got us our house and we're so grateful! It's very bare and needs lots of work! Our focus now is on treatment options and developmental aids that can improve the bleak prognosis the docs gave us. I've looked extensively into treatments and programmes that could give her best shot at reaching some milestones, but they're not cheap, but we will do whatever we can to make this possible for our princess. If she gets even the slightest cold now it could cause awful seizures, further knock backs and life threatening infections. Obviously we are hoping it doesn't come to this and we are praying she will be the exception to the rule, I'd go as far as to say we are praying for a miracle. But we just NEED to give our little baby the best quality of life cause we just don't know what tomorrow will throw at us. Anything you could give would be massively appreciated and every minute counts nows, we are living on absolute eggshells now and watching her every move just praying she doesn't deteriorate before we can get her the life she so greatly deserves. She's the most beautiful, happy little special baby ❤️❤️

Donations

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  • Anonymous 
    • 18 £ 
    • 3 mos
  • Abigail Green 
    • 20 £ 
    • 4 mos
  • mike burns 
    • 10 £ 
    • 4 mos
  • Norma Powell 
    • 40 £ 
    • 4 mos
  • Kirsty Napier 
    • 20 £ 
    • 4 mos
See all

Fundraising team (2)

Laura Dearden 
Organizer
Raised 305 £ from 15 donations
Barrow-in-Furness, North West England, United Kingdom
Johnathan Mould 
Team member
Raised 125 £ from 5 donations
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