Savage Joy in need of equip w blind capabilities

In 2019, without warning, I woke up with much of my eyesight gone. My husband
took me to the hospital + I was diagnosed with myopic degeneration. I was still working, but with great difficulty. I started getting eye injections, yes, with a needle, and as traumatic as it was, it kept me going. They do not bring sight back, but they attempt to stop you from losing more. The eye injections are over $12k each. 2 eyes x every 30 days. I was getting bills for thousands of dollars because I was told that my disorder was too rare and I was too young. My literal response to my insurance company was “would I be getting needles in my eye if it weren’t necessary?! Is this some kind of kink I don’t know about”? The hospital would no longer give me injections unless I signed a waiver stating I would pay the full amount each time. After working in insurance for 10 years, there was no way in hell I was going to be presumptuous they would end up paying it.  Thus, I needed to take off of work unpaid until I could get the injections again. Even then, I have a $5k annual deductible, sou was still paying that 
My eyes got worse and worse and they stopped treating the left one all together. I had 2 eye surgeries for detached cornea and cataracts and will have more in the future.
My eyes are now at an 85% sight loss.  a mobility expert comes to my house every other week and we practice walking with a cane, climbing up and down steps, and she helps my husband learn the correct way to guide me. I also meet with people at the Pennsylvania association of the blind every week for electronic use. That is where I was shown the devices I need and tried out different  kinds. 
The equipment specific to my disorder
needs an actual prescription from a doctor who is a specialist in low/no vision. The items I am trying to raise money for were given to me by my case worker. 
It truly is incredible the way our system is ok with having a person who is dealing with the trauma of becoming disabled: stop working, stop driving, loss of independence, etc and exacerbating it by throwing obscene medical bills at them in the process. It is violence. There is no other word for it.
I’ve done my show for 4 years and it has always given me a sense of pride and accomplishment. I can’t remember a time I didn’t do it. Unfortunately, it is getting nextto impossible for me to carry on withought electronic adaptations .  Becoming disabled makes you lose so much self-worth. I fear not being able to do the thing I love most.
I want to sincerely thank those of you who have been so kind and supportive as you follow me through this traumatic process. The outpouring of love I receive when I post about it is truly incredible. 

much love and solidarity, 
Savage Joy