Our dear friend, Saul, was diagnosed last October with bulbar-onset amyotrophic lateral sclerosis (ALS). We are heartbroken, and we hope to do everything we can to help support Saul and his daughters in this journey.

There is currently no medical cure for ALS, so treatments focus on slowing the progression of the disorder and maximizing Saul's quality of life. Bulbar-onset ALS starts with the throat, followed by progressive paralysis. Speaking and swallowing are his main struggles. Saul is undergoing treatment at an ALS specialty clinic in Portland.

Life expectancy for bulbar-onset ALS varies — Saul's medical care team is hopeful that he will have another year of quality life, if medications and treatment continue to slow the progression. We are hoping for more time than that with Saul.

We are also reaching out for financial support for Saul because of decreased income on top of medical bills for treatment. Some of his treatments are not covered by insurance. He has transitioned to long-term disability, which is not enough to cover living expenses for him and his two daughters.

Thank you for helping us keep Saul around as long as possible. Anything and everything helps! We are most grateful!

With love and gratitude,

Saul’s family and friends