Our dear friend, Saul, was diagnosed in October with bulbar-onset amyotrophic lateral sclerosis (ALS). We are heartbroken, and we hope to do everything we can to help support Saul and his daughters in this journey.

There is currently no medical cure for ALS, so treatments focus on slowing the progression of the disorder and maximizing Saul's quality of life. Bulbar-onset ALS starts with the throat, and it will slowly over time paralyze him. Saul is undergoing treatment at an ALS specialty clinic in Portland. Speaking and swallowing are his main struggles right now. He is still working at school as a K–8 Social Emotional Advocate, though weakness in his voice and medical visits are forcing him to work less.

Decreased income, on top of medical bills for diagnosis and treatment, are why we are reaching out for Saul’s financial support. Some of his treatments are not covered by insurance, and he will soon be transitioning to long-term disability, which will likely not be enough to cover living expenses for him and his two daughters.

Life expectancy for bulbar-onset ALS varies -- Saul's medical care team is hopeful that he will have another year of quality life, if medications and treatment are able to slow the progression. We are hoping for more time than that with Saul.

Your support will help Saul keep up with his medical expenses, offset his living costs while undergoing treatment, and seek care not covered by insurance. Thank you for helping us keep Saul around as long as possible. Anything and everything helps! We are most grateful!

We have also created a Give InKind page for Saul where you can stay connected to Saul, especially to offer more local or specialized support.  There are opportunities to provide meals and other help that is needed.  He will be posting updates in both places.

With love and gratitude,

Saul’s family and friends