Our dear friend, Saul, was diagnosed October 2025 with bulbar-onset amyotrophic lateral sclerosis (ALS), a progressive and terminal neuromuscular disease. We are heartbroken, and we hope to do everything we can to help support Saul and his daughters in this journey.

There is currently no medical cure for ALS, so treatments focus on slowing the progression of the disorder and maximizing Saul's quality of life. Bulbar-onset ALS starts with the throat, followed by progressive paralysis. Saul's symptoms began with difficulty speaking and swallowing and have now (one year later) progressed to include breathing challenges and increasingly limited mobility. Saul is undergoing treatment at an ALS specialty clinic in Portland.

Life expectancy for bulbar-onset ALS varies. We are hoping for as much time as possible with Saul.

Because Saul's physical needs are complex and ever changing, we are primarily reaching out for financial support for him. Your contributions literally make up the difference between his now-limited income and unpredictable medical bills and supportive needs, some of which are not covered by insurance. He has transitioned to long-term disability, which is not enough to cover living expenses for him and his two daughters.

Thank you for helping us keep Saul around as long as possible. Anything and everything helps! We are most grateful!

With love and gratitude,

Saul’s family and friends