Sammy Rogers

On August 19, 2020 this beautiful, talented, smart, outgoing, fun loving young lady with a heart of gold forever had her life changed with what was supposed to be an amazing day full of fun and excitement at Busch Gardens with her best friend. The excitement they had planning and preparing for this trip was just so much fun to watch and share with them. Just teenagers being teenagers. I talked to her round lunch time she was so excited telling me how much fun she was having and how amazing the rides were I was so happy for her and couldn’t wait to hear all about it when she returned home, however that all changed drastically and so fast at 4:30pm When I received a call from her friends mom that she had gotten overheated and was at the emergency medical tent with extremely high blood pressure they got her hydrated and eventually let her go by 6:00pm I was receiving another phone call to let me know that she was being rushed to the hospital by rescue squad for seizure like spells that were not able to be stopped. My heart sank I was 3 1/2 hours away from my baby girl, I hopped In my car immediately and drove to the hospital it seemed like I would never get there the entire time I’m praying my baby is ok and racking my brain trying to figure out what was going on up until this point in my daughters life she had never had a seizure or anything like this it didn’t make sense and I just couldn’t get there fast enough.  I walked into her room and my heart just sank as I see my 17 year old daughter lying there shaking uncontrollably and in so much pain not knowing where she was or even who I was at first she couldn’t talk had no strength and no one could tell me why.  They did ct scan and MRI couldn’t find anything they released her to me after midnight saying they couldn’t find anything wrong. Three hour drive back home it took my husband and myself to get her into the house and in her bed the next morning within 10 minutes of being up 12 more seizures called the rescue squad and back to the hospital more test were run another MRI and CT scan still no explanation as to what was happening admitted to the hospital did epilepsy testing for 24hrs came back not epilepsy and the confusion and frustration just took over my daughter and us how can you not tell us what is wrong and how to make her better heartbreaking for all of us again, released once agin from the hospital and sent home our daughter couldn’t even walk, shower, brush her teeth, hair or get dressed by herself 24 hour round the clock care which meant I couldn’t work I had to be there with her and my husband worked, the toll it took on my daughter and myself, husband and our two other children was just unimaginable my two other kids were so confused and broke down crying at the sight of having to see there older sister this way and felt completely helpless. We followed up with therapy and psychiatrist and pcp and nothing one week later back at the hospital again still no answers our baby girl had to be pit in an in patient facility to manage meds they thought would help her for 10 days we would drive 3 1/2 hours there and 3 1/2 back every other day to only to get visit with her for 30 minutes the hardest days of my life were having to walk away and leave her there with her asking me not too.  Once released from there she came home seizures still continuing she missed the first 14 weeks of her senior year of high school and had the license she had just gotten a month prior to all this happening taken away. Finally back in school and getting things back on track we were slowly moving forward day by day things were starting to get better she was back at achool I was back at work she was starting to feel like a teenager again. then last Sunday she had 45 seizures and on Monday had another 30 back to ER only to be sent home again with no answers she is now back out of school and constantly having seizures of some kind and we still have no answers or diagnosis or even what we can do to help her. I am currently out of work again because she is back to requiring 24 hour care she is so weak and in so much pain the seizures just take it out of her we have future appointments with more doctors and a neurologist coming up praying for some answers and relief for our sweet girl. You go above and beyond for your kids skies the limit, the love and admiration for your children is so amazing and not knowing what to do or how to help her and have to hear her tell you mom I don’t want to do this anymore it hurts to bad is so devastating and absolutely heartbreaking. We are praying for answers and relief for our beautiful daughter. After telling you her story I want everyone to know this is not something we would have thought about doing we have always worked so hard to provide the best life that we can for our children, we have family and friends who are trying and doing their best to help us but with me being out of work to be with her 24 hours which is right where I want and need to be, however the medical bills and prescription  bills and regular bills are still coming in and piling up I ask that you please keep our daughter in your prayers. And to please know that anything you can and are willing to donate is appreciated above beyond anything words can describe.