SamJam is about a long journey for a man who wants to give back… and pay ahead. Sam Oswald underwent spinal fusion surgery when he was four years old. Along with the months of recuperation from the surgery and learning to walk again, Sam also learned of the diagnosis that would follow him throughout his life—neurofibromatosis (NF). A funny-sounding affliction, but a neurological disorder that strikes 1 in every 2,500 people. While you may not have heard of NF, it affects more people than Muscular Dystrophy, Tay-Sachs, and Huntington’s disease combined.
Since that early age, Sam has had two brain tumors, shunt revisions, bone grafting on both legs, knee surgery, dermal tumor removal, and eye surgery. Most recently, Sam completed two surgeries for a rare tumor in his leg, radiation and chemotherapies, and is left with a lower leg that no longer functions.
In the last year, Sam has undergone additional surgeries to remove a tumor in his chest and a recurrence of cancer in his leg.
Now, at 36 years old, Sam has much he could complain about, but you won’t hear it. Sam continues to lead a very positive life, live independently, and is a friend to everyone he meets. The years of treatment and courage would not be apparent to people first meeting Sam.
After all this, Sam thinks it’s time. Time to give back… to thank those that have helped and supported him. He also wants to pay it forward so other patients with NF can get the assistance they need, research can continue and the public can be more aware of this disorder that very well may strike someone you know. One of Sam’s passions is music of all kinds... and that, my friends, was the start of SamJam!
Want to join me in making a difference? We're raising money to benefit Samjam4Nf, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to Sam and all of us!
Funds raised during the SamJam End of Summer Bash will be donated for NF research and support services for NF patients and their families. SamJam4NF, Inc., is a Section 501(c)3 nonprofit organization.
Your gift may be tax-deductible to the extent allowed by law. Please consult with your own tax advisor.
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