When Dolu went into Sickle Cell crises in the early hours of the night, his mother never knew it would be the last time she would see him. Having no one to turn to, she sought consultation from neighbors who gave advice that worsened the situation. Unfortunately, due to their mismanagement, Dolu died. Worse still, this real scenario happens often.
The lack of proper medical and affordable care, ignorance and poverty, results in trauma, extreme pain, neglect, abandonment and even death amongst those with the Disorder. Unfortunately, an increasing number face several Sickle Cell complications ranging from leg ulcers to avascular necrosis. When these conditions are not treated, they result in social, economic and psychological difficulties and sometimes even death.
The pain associated with accidents are nothing compared to the pain "they" go through. Their pain is excruciating and may lead to deformity and sometimes death.
The lack of proper medical support, halfway house/shelters, mentoring and empowerment programs does not help to mitigate the suffering of people with the disorder and their families. There is an urgent need to provide basic management health care and empowerment programs to people with Sickle Cell Disorder.
This is what SickIe Cell Advocacy and Mgt Initiative (SAMI) does. SAMI began as a result of Toyin Adesola's five-decade traumatic experience with sickle cell, and her wanting to soften the experience of others. SAMI empowers and improves the lives of people with sickle cell disorder by offering free clinics, where people receive treatment, medication, vitamins, supplements and education; creating awareness and providing support.
THE XTRA CARE SICKLE CELL FREE CLINIC is a free clinic for people with sickle cell. The free clinic runs every third Saturday of each month. The clinic’s aim is to bridge the gap between the person with sickle cell and health providers. This we do through the provision of free medication, doctors consultation, and counseling. Where possible, we refer people to hospitals for further treatment, especially for underprivileged people living with Sickle Cell Disorder. Starting in 2015 and with only 40 beneficiaries, we have reached over 300 people in its three years of existence with an average of 140 monthly attendance of people with Sickle Cell Disorder. We have indeed seen great improvements in peoples lives
However, this program is at risk of closing due to lack of funds. Please help us to keep SAMI running. SAMI needs $18,000 to operate for the next 2 years. We thank you for your generous donation and for spreading the word about SAMI to others.
- Zubi Mbanefo
- Tito Adenihun
- Ibikunle Ogunbanjo
Los Angeles, CA