Sam Millar, Our DMD Superhero

On 14th September 2025, the Millar family along with other family and friends will be taking part in the Kiltwalk in Edinburgh to raise funds and awareness for their little Superhero Sam. Here is a little information about Sam, his condition and what funds are being raised for.

About Sam

Sam is age 8 and lives in Edinburgh with his Mum Karla, Dad Stephen and 3 brothers Zac, Jayden & Jaxon. Sam is just a normal happy 8 year old boy, if you have ever met Sam you will know what a funny, loving, caring and happy little boy he is. Sam has a condition called Duchenne Muscular Dystrophy (DMD). DMD is a severe rare muscle wasting disease that affects every single muscle in the body over time, starting in the lower legs, and later affecting the upper limbs, heart & lungs. Boys with DMD usually require the use of a wheelchair full time by the time they reach their teenage years, sometimes earlier. There is no cure for DMD and life expectancy is reduced, but there are promising treatments on the horizon which can potentially slow the progression. Sam is showing signs of a little decline and his little legs are getting weaker over time, meaning he now needs to use his wheelchair and walking aid a lot more often.

Sam is on a high dose of steroids to try and slow the disease progression, to keep his muscles stronger for longer and to protect his heart & lungs, long term steroid use comes with it's own side effects. He also wears night splints, does daily stretches and regularly attends physio appointments, hospital appointments and much more.

After raising awareness of Sam's story through various different media sources and campaigning for treatment. The Millar family have received a massive outpouring of love and support for Sam, with lots of family, friends and local community some of whom they have never met before have shown a keen interest in raising funds for Sam for whatever he needs. The family have decided to set up a little fund for Sam and I am hoping we can help with this.

Sam's fund will be used solely for Sam himself to enjoy the things he loves doing and to make the most out of life, making lots of special happy memories along the way before things become a little more difficult for Sam, money raised will also go towards medical needs. With DMD we don't know what the future holds for Sam, but we do know that with high standards of care there is hope that it can keep Sam on his feet for longer but there is only so much the NHS can offer. The family have to fund any private treatments themselves. We all want the best for Superhero Sam and like his Mum & Dad want to preserve his independence for as long as possible so can continue to enjoy the things he loves. All funds raised for Sam will be used to aid private treatments that will help him such as hydrotherapy, swimming, which help this muscles and reduce pain and will also go towards Sam's needs of medical equipment to keep him comfortable and enjoying the things he loves but struggles with.

No donation is too small, we really appreciate all the love and support for Sam. He is just the happiest boy ever and has the most amazing circle of family and friends. If you would like to join us in taking part in the Kiltwalk, please reach out to us.