Main fundraiser photo

Salt Air Jam For Cystic Fibrosis

Donation protected
Salt Air Foundation, a 501(c)3 non-profit annually hosts Salt Air Jam, a music festival / fundraiser to raise money to offset medical expenses for people living with Cystic Fibrosis (CF). 
100% of net proceeds from concert tickets and donations will go into the charity fund at Salt Air Foundation to be used  for patient assistance and research.
Funds are needed immediatey to meet  our May 19th Salt Air Jam and May 20th Salt Air Scramble goals.
Here is an example of costs and challenges for a CF patients...My 7 year old grandson, Eli:
Meds:
Orkambi - $20321.55 (New CF drug that reverses CF at cellular level) not a cure
ZenPep - $2639.99 (Enzymes takes with every meal)
Qvar - $254.99 (Asthma/Allergy inhaler)
Ventolin - $71.99 (Asthm inhaler)
Miralax - $48.99 (Constipation)
Azithromycin - $71.99 (Antibiotic Bacteria in lungs forever)
Nexium - $497.99 (Acid Reflux)
Singulair - $132.99 (Asthma)
Pulmozyme - $3349.08 (Salt Air)
Flonase - $41.50 ( Allergies)
Allegra - $27.39 (Allergies)
Multivitamin - $31.86
Pediasure - $150

TOTAL - $27,640.31 per month
RespirTech Airway Clearance System - $15000

Eli takes around 35 pills everday.
(2) 30 minute nebulizer treatments with pulmozyme(salt air) daily
(2) 30 Airway Clearance treatments(Vest Therapy)
He weighs 50lbs but must eat over 2000 calories daily(same as adult)
Donate

Donations 

    Donate

    Organizer and beneficiary

    Jeff Gilder
    Organizer
    North Myrtle Beach, SC
    Salt Air Foundation
    Beneficiary

    Your easy, powerful, and trusted home for help

    • Easy

      Donate quickly and easily

    • Powerful

      Send help right to the people and causes you care about

    • Trusted

      Your donation is protected by the GoFundMe Giving Guarantee