Salt Air Jam For Cystic Fibrosis

Salt Air Foundation, a 501(c)3 non-profit annually hosts Salt Air Jam, a music festival / fundraiser to raise money to offset medical expenses for people living with Cystic Fibrosis (CF). 
100% of net proceeds from concert tickets and donations will go into the charity fund at Salt Air Foundation to be used  for patient assistance and research.
Funds are needed immediatey to meet  our May 19th Salt Air Jam and May 20th Salt Air Scramble goals.
Here is an example of costs and challenges for a CF patients...My 7 year old grandson, Eli:
Meds:
Orkambi - $20321.55 (New CF drug that reverses CF at cellular level) not a cure
ZenPep - $2639.99 (Enzymes takes with every meal)
Qvar - $254.99 (Asthma/Allergy inhaler)
Ventolin - $71.99 (Asthm inhaler)
Miralax - $48.99 (Constipation)
Azithromycin - $71.99 (Antibiotic Bacteria in lungs forever)
Nexium - $497.99 (Acid Reflux)
Singulair - $132.99 (Asthma)
Pulmozyme - $3349.08 (Salt Air)
Flonase - $41.50 ( Allergies)
Allegra - $27.39 (Allergies)
Multivitamin - $31.86
Pediasure - $150

TOTAL - $27,640.31 per month
RespirTech Airway Clearance System - $15000

Eli takes around 35 pills everday.
(2) 30 minute nebulizer treatments with pulmozyme(salt air) daily
(2) 30 Airway Clearance treatments(Vest Therapy)
He weighs 50lbs but must eat over 2000 calories daily(same as adult)

Donations (0)

  • Mike Gaenzler  
    • $50 
    • 30 mos
  • Mitch & Ewa Laurance 
    • $50 
    • 31 mos
  • James Barkhouser 
    • $2,500 
    • 31 mos
  • Anonymous 
    • $50 
    • 31 mos
  • Gary Taylor  
    • $25 
    • 31 mos
See all

Organizer and beneficiary

Jeff Gilder 
Organizer
North Myrtle Beach, SC
Salt Air Foundation 
Beneficiary
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